The Road Ahead

I came across this video from Myeloma UK. It gives advice about the recovery process from Stem Cell transplant. I found it useful although need for a neutropenic diet is no longer seen as relevant according to the stem cell nurses at Nottingham. https://youtu.be/zIXcGBv7Ryc

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Kidney Conundrum

The ongoing effect of my poor kidney function on my treatment. Yesterday in Nottingham I met with my consultant to consider the final phase of treatment which would again involve a high dose of chemotherapy followed by stem cell implantation. This was scheduled for October but has now been put on hold. Read more by clicking the title.

In Between Days

Tomorrow I travel to Nottingham for the first part of the second phase of my cancer treatment. It's now over a month since the end and of my chemotherapy, the first phase of my treatment. It's been great to spend much of the last five weeks away from the regular hospital appointments and consultations. The [...]

Vitamin K

My INR levels continue to fluctuate. The lack of stability is inherent to the use of Warfarin as a blood thinner. The fact of my chemotherapy just complicates matters. Warfarin interacts with other drugs and any changes of medication can affect the effectiveness of the Warfarin. Diet also plays a part. Vitamin K is present [...]

New Routine….Same Wait

Chemo routine subtly changed. Still Tuesdays and  Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions  Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down  Nurses short Pharmacy slow Some things don't change. Waiting.

On ‘yer Bike

Since returning to the UK I have put on weight. This is a combination of the steroids Inhave needed to take, the water retention courtesy of my kidney problems and DVT, richer food and a lack of exercise brought on by the enforced bed rest as an inpatient and the effects of the Myeloma. In [...]

Be Aware!

Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today.  The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]

Beginnings 

Looking back it would be difficult to identify when I first contracted Myeloma. It seems fair to say it was around before I noticed my shoulder back last December. Multiple Myeloma begins when cells in the bone marrow are subjected to external factors which might be environmental or chemical in origin and may be linked [...]