Medication

As my kidney condition has moved towards its ultimate destination (End Stage Kidney Disease -ESKD) the range of medications needed to replace kidney function has both changed and grown. My morning pot of meds has now become quite a mouthful. In addition there are meds to take with each meal and meds to take at … Continue reading Medication

Wide Awake

It’s just before 4am as I write this. The middle of yet another sleepless night. I have seen each hour of the night so far and it’s been like this for days now. The sleeping tablets (Amitriptyline) had limited effect and I have stopped taking them. Basically they made me drowsy but did not result … Continue reading Wide Awake

Fistula

Yesterday I travelled to Oxfordshire to the town of Banbury. The purpose of the journey was to undergo an operation on my arm to create a Fistula. The first stage of a process which will lead to Dialysis. The past couple of weeks have been challenging as I have come to terms with the magnitude … Continue reading Fistula

It’s rather irritating!

It’s virtually continuous and can strike anywhere on the body. It is often much worse at night, and has made it difficult to sleep. Imagine itching all over, the urge to scratch at the skin but with limited relief. This is one of the many effects of Chronic Kidney Disease. There are no obvious rashes … Continue reading It’s rather irritating!

Combatting the Kidney Crusher!

When I started this blog in 2017. The principle manifestation of the Myeloma seemed to be orthopaedic ie related to my bones - I had developed lesions in various bones indicative of the actions of the Myeloma over the previous months. Hence, the title of the Blog was Battling the Bone Breaker. In truth, the … Continue reading Combatting the Kidney Crusher!

Helping Out At Home

Here in the UK you are currently required to self-isolate for 10 days following a positive Covid Diagnosis. I am now on Day 5. The halfway point. I’m starting to feel better overall. Those isolating in England are phoned regularly by someone in Track and Trace - I have been phoned three times. These calls … Continue reading Helping Out At Home

Pressure Tactics

One of the side effects of Myeloma is Kidney Disease and one of the results of poor kidney function is high blood pressure. Although the Myeloma has remained in remission, my kidney function has remained low and since May (when I was briefly in hospital) my kidney function has been much less than in previous … Continue reading Pressure Tactics

“Out of the Blue”

It’s been over three years since my last post. I have remained in good health, survived Covid unscathed and been doubly vaccinated. Held down a full-time teaching job. I have continued to have bimonthly haematology consultations and twice yearly renal consultations together with associated blood tests. Everything has been stable until this week …. My … Continue reading “Out of the Blue”

Zero Coke and Minimum Pepsi

Last week I had what was undoubtedly the best renal consultation in a year. I had scheduled a day of appointments with a visit to my new renal consultant at 9am followed later in the day by a scheduled appointment with my Haematology consultant at 1:15. It made for a long, but ultimately productive day, … Continue reading Zero Coke and Minimum Pepsi

Where I’m At

Time ticks on and there has been little to say in recent weeks. Both my wife and I remain off work on sick leave, following her heart attack and my slow recovery from the stem cell transplant. We both are recovering well and have started to do a little more as we gear up for … Continue reading Where I’m At

So Irritating

It's just over a week since I was released from hospital. It has been great to be out. After the excitement of the trip to A&E last weekend the rest of the week was uneventful as my temperature returned to normal. On Thursday I visited my consultant back in Lincoln. She was very pleased with … Continue reading So Irritating

Changing Tastes

One of the strangest outcomes of my recent chemotherapy is the effect upon my appetite and tastes. This maybe partly due to the hospital food, which was not particularly appetising. However, during my most neutropenic period I lost all desire for food. One of the effects of the Melphalan is to strip the lining of … Continue reading Changing Tastes