I came across this video from Myeloma UK. It gives advice about the recovery process from Stem Cell transplant. I found it useful although need for a neutropenic diet is no longer seen as relevant according to the stem cell nurses at Nottingham. https://youtu.be/zIXcGBv7Ryc
One of the ongoing issues related to my myeloma and kidney function has been swelling in my feet. This has fluctuated a little but has generally been caused by the over retention of water in my body. Following a conversation with my nurse during recent stem cell treatment it emerged that I really should be [...]
The ongoing effect of my poor kidney function on my treatment. Yesterday in Nottingham I met with my consultant to consider the final phase of treatment which would again involve a high dose of chemotherapy followed by stem cell implantation. This was scheduled for October but has now been put on hold. Read more by clicking the title.
Tomorrow I travel to Nottingham for the first part of the second phase of my cancer treatment. It's now over a month since the end and of my chemotherapy, the first phase of my treatment. It's been great to spend much of the last five weeks away from the regular hospital appointments and consultations. The [...]
My INR levels continue to fluctuate. The lack of stability is inherent to the use of Warfarin as a blood thinner. The fact of my chemotherapy just complicates matters. Warfarin interacts with other drugs and any changes of medication can affect the effectiveness of the Warfarin. Diet also plays a part. Vitamin K is present [...]
It's nice to get away. To break the shackles of the chemotherapy weeks. The biweekly trips to clinic 7 and Ingham award which force me to be in Lincoln. Every third week is a week off - it's a small respite as Instill need to visit my consultant on Thursday but it frees up the [...]
Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Since returning to the UK I have put on weight. This is a combination of the steroids Inhave needed to take, the water retention courtesy of my kidney problems and DVT, richer food and a lack of exercise brought on by the enforced bed rest as an inpatient and the effects of the Myeloma. In [...]
Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]
Looking back it would be difficult to identify when I first contracted Myeloma. It seems fair to say it was around before I noticed my shoulder back last December. Multiple Myeloma begins when cells in the bone marrow are subjected to external factors which might be environmental or chemical in origin and may be linked [...]
I have a new ally in the fight against sleeplessness. Following several weeks of disrupted sleep I have got prescribed some sleeping tablets. So welcome on board a new drug to be taken as and when necessary. The drug is Zoplicone. The drug has the advantage of helping me to sleep without leaving me drowsy [...]
An itchy feeling in the nose. A tingling in the throat. There is no doubt about it there is a cold coming. Statistically people with multiple myeloma are 15 x more likely to pick up infections than those without. At this stage the symptoms are mild but I need to watch my temperature carefully - [...]
I am lucky to live in the U.K. - American friends have told me that if they were in my position then the treatment I have received would have bankrupted their families. Even my limited time in Kenya over the Easter weekend showed me just how expensive health care can be. A weekend of testing [...]
It's 3am. I should be fast asleep I am not. I've tossed and turned in vain. My stomach in knots. The morning is still far off. I await the grey of dawn. Another day. This is the longest I've been ill. A lack of feeling whole. It seems never ending Will I ever be well [...]
It is the end of my second cycle of chemotherapy and I enter into my chemo free week. This brings mixed blessings - firstly there are no steroids to take so that I shall hopefully be able to get better sleep as the week wears on. There are no Valcade injections so less trips to [...]