Myeloma : Then and Now

One of the programs we like to watch here in the UK is “Call the Mdwife”. It’s not my usual genre of TV, but it is a fascinating watch. The link to the title of the blog may seem tentative, but there is a point I assure you. Please read on. The plot of “Call … Continue reading Myeloma : Then and Now

Monday, Wednesday, Friday Nights

The routine is well embedded. It doesn’t matter if it’s the holidays or if I’m off work (through illness or other reasons) as I am today. Every Monday , Wednesday and Friday I leave home at 4:30pm to arrive here at 5pm for four hours of dialysis. prior to departure about an hour before, I … Continue reading Monday, Wednesday, Friday Nights

Bed Blocking

Sadly all has come to naught. They had the kidney, the tests were good but they had no beds. At 6:30pm the surgeon came to see me. She was extremely frustrated. After hours of negotiations and fighting for a bed they had one. However, the patient who was due to be discharged had developed complications. … Continue reading Bed Blocking

The List

Today has not turned out as expected. Today I have had the call. The long expected call. The potential transplant has arrived. I have been on the transplant list since the Spring, but the list was backdated to last December (when dialysis started). The Oxford team predicted that within a year I would get the … Continue reading The List

Getting Off Of The Couch

About ten years ago I was running 5K on a regular basis. I had started as part of a plan to reduce my weight and lost over 5 stone over a nine month period. I was regularly running Park Run and my fastest run was just over 27 mins. By early 2013 I was running … Continue reading Getting Off Of The Couch

Cutting The Lawn

It’s a small thing - probably something that most of you have done already this year. Certainly the lawn needed a good trim. However, for me it is a sign of a return to normality. Since last summer I really have not had the energy to contemplate much in the way of housework let alone … Continue reading Cutting The Lawn

Matter of Routine

I have settled into the routine. Each Monday, Wednesday and Friday evening I get dropped off at 6pm for a 4 hour session of dialysis. At a time which varies but is usually between 10:30pm and 11:30pm I get picked up and go home to sleep. Those of you who are mathematically minded will notice … Continue reading Matter of Routine

Back Home

I was released from the Churchill Hospital at 4pm on Thursday with a large bag of medication, This included a two week dose of cefazolin, an antibiotic. This needed to be handed over to the dialysis nurses in the renal unit at MKUH where it would be used for intravenous application at the end of … Continue reading Back Home

‘Done and Dusted‘

I have just returned to my room having had my first four hour dialysis in my new fistula. This fistula fitted on the 13th Jan performed really well for 9 weeks. The whole process was very smooth. The annoying thing is that for almost five hours (I’ll explain the extra hour later) I had To … Continue reading ‘Done and Dusted‘

Another Day Another Op

So today I have been back in the Foscote Hospital Banbury. I am here for a second Fistula operation. The first fistula unfortunately failed after a few dialysis sessions. There was an attempt to repair the fistula on Christmas Eve but this was unsuccessful. So on New Years Eve I had another operation to fit … Continue reading Another Day Another Op

Reaping the Benefits

I am beginning to see the benefits of regular dialysis. With the Tesier Line Fitted and the pain subsiding the dialysis sessions have gone well. I have yet to do a 4 hour session- yesterday’s session was shorter as they had had issues with other patients which meant I started an hour later. It wasn’t … Continue reading Reaping the Benefits

New Year’s Eve

Up at 6am this morning ready to leave the house by 7am for the hours journey to the Churchill. I am back here today to undergo a procedure. This morning I am being fitted with a Tesier Line. This will enable dialysis in the medium term whilst they create a new Fistula and allow it … Continue reading New Year’s Eve

Christmas

I was sent home from Churchill hospital at 8:30pm on Christmas Eve. I had completed another 3 and a half hours of dialysis to follow the previous two and a half hours on 23rd December. Finally I was feeling normal. Better than I had in months. I could feel the energy. We got home about … Continue reading Christmas

Christmas Eve

I am in the Churchill Hospital in Oxford. I was admitted yesterday following the failure of my Fistula. Last night a temporary line was fitted to my groin so I could undertake dialysis. They did two and a half hours dialysis. Today they plan to do four more hours dialysis. Also today they plan to … Continue reading Christmas Eve