For the Chop

In just three days I have lost most of my hair. The speed of this had perhaps been the most surprising thing to have happened in the whole treatment process. Sunday Monday Tuesday Wednesday Though it will eventually grow back, there will be a substantial period of baldness or partial baldness for as much as … Continue reading For the Chop

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Transfusion

The featured image shows my room from the outside. The long thin widows nearest to the grey tiled building are mine. As my neutrophils have continued to rise up to 0.6 at last count. The engrafted stem cells developing into neutrophils, red blood cells and platelets among other things. I have also had GCSF injections … Continue reading Transfusion

Ups and downs

This past 24 hours I have started to feel more unwell. This has mainly been a low level nausea and an accompanying headache. I have completely lost my appetite and find it particularly hard to eat any form of meat. I have been given anti- sickness and anti-diarrhoea medicines which has helped. My mouth and … Continue reading Ups and downs

Time Shifts Slowly

A matter of routine. The days morph into weeks. One week down already. A long and slow descent. As my cells die slowly.   Within this room I lie. With four familiar walls. Shuttered window viewpoint. On Autumn world outside. It's a limited life.   Here in isolation. Yet not alone at all. Friends and … Continue reading Time Shifts Slowly

Calm Before The Storm

It's a little weird being here in hospital. Although I am not well (obviously) I am not feeling really ill. So whilst they monitor and measure I remain for now in relatively good health. My neutrophils remain high, so for now my body remains protected from the environment around me. I do know for certain … Continue reading Calm Before The Storm

Day 0/1

Today has been busy, after a quieter morning. I managed to get reasonable sleep in spite of regular trips to the loo, due to the diuretics. They were worried I was retaining too much water, but the body is a complex organism and getting the balance is difficult. In recent days they have increased my … Continue reading Day 0/1

Feeling Messed About

A phone call at 5pm last night has left me feeling a little messed about. The call from my consultant at Nottingham was to inform me that when I go in on Sunday or Monday they will not after all perform the chemotherapy. Instead Renal will look at my kidney to determine whether I will … Continue reading Feeling Messed About

Treatment and After Care

Today I was back in Nottingham for a support meeting ahead of my Stem Cell implantation scheduled for the week of 23rd October. This meeting held at Maggie's Centre on the Hospital Campus was aimed at informing the process to come and consider the after care. Patients and their families were encouraged to come and … Continue reading Treatment and After Care

Ill when you’re ill

I am writing this from bed where I have spent much of the past two days. On Sunday night I felt the telltale signs of an oncoming cold. I think normally I would probably carry on, but this time it has been different. The cold has 'knocked me for six'. The persistent cough and runny … Continue reading Ill when you’re ill

New Norm

The ring of the alarm. 7 am Morning comes too soon. On a good night I've been up twice. But sometimes thrice. Early hours ablutions. Within minutes they are up. Wife an daughter. Showers, hairdryers, dressed, breakfast out. The hustle and bustle of a typical morning followed by Silence. The house is quiet. Maybe another … Continue reading New Norm

Renal etc

Today I had a mammoth trip to Lincoln County Hospital meeting with two consultants as well as having my Hickman Line checked and prescriptions issued. All in all I spent four and a half hours in hospital, but unlike previous visits there was relatively little waiting. The day began at 9:40 when I arrived at … Continue reading Renal etc

Willen Walk

Last night there was a twilight lantern walk around Willen Lake in Milton Keynes. This was organised by Willen Hospice as a fundraiser and as a way of celebrating the life of those lost to cancer in 2017. With two friends (Pete and Rachel) having passed away this year it was an excellent way to … Continue reading Willen Walk

Kidney Conundrum

The ongoing effect of my poor kidney function on my treatment. Yesterday in Nottingham I met with my consultant to consider the final phase of treatment which would again involve a high dose of chemotherapy followed by stem cell implantation. This was scheduled for October but has now been put on hold. Read more by clicking the title.