Mum

Today is a day of celebration. It's Mum's birthday and I won't say how many years. It also marks the end of my time in Lincoln as later this weekend I will return to MK. I can't express how grateful I am to Mum for providing a home for me over much of these past … Continue reading Mum

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Why Lincoln?

I was released from hospital a day earlier than expected and given transport back to Lincoln. It is here I will be staying for the coming few weeks as I recuperate. Lincoln is my family home. It is also the UK hospital where I was first diagnosed and treated for Myeloma. When my wife (Anita)  … Continue reading Why Lincoln?

Transfusion

The featured image shows my room from the outside. The long thin widows nearest to the grey tiled building are mine. As my neutrophils have continued to rise up to 0.6 at last count. The engrafted stem cells developing into neutrophils, red blood cells and platelets among other things. I have also had GCSF injections … Continue reading Transfusion

Time Shifts Slowly

A matter of routine. The days morph into weeks. One week down already. A long and slow descent. As my cells die slowly.   Within this room I lie. With four familiar walls. Shuttered window viewpoint. On Autumn world outside. It's a limited life.   Here in isolation. Yet not alone at all. Friends and … Continue reading Time Shifts Slowly

New Norm

The ring of the alarm. 7 am Morning comes too soon. On a good night I've been up twice. But sometimes thrice. Early hours ablutions. Within minutes they are up. Wife an daughter. Showers, hairdryers, dressed, breakfast out. The hustle and bustle of a typical morning followed by Silence. The house is quiet. Maybe another … Continue reading New Norm

Free

I'm free. I have no scheduled appointments at hospital for many weeks ahead. 😃 Today I met with my consultant who does not need to see me again until October, after my Stem Cell transplantation has taken place. That leaves only my scheduled stem cell harvesting in late August and the transplantation in early October.  … Continue reading Free

A Strange Father’s Day

For the first time in living memory I am a Father alone on Father's Day. I know it's a commercial thing (unlike Mothering Sunday) but even so it has amplified the absence of family. My own Father died in 2006 of Motor Nueron Disease a rapidly developing disease which took him from an active man … Continue reading A Strange Father’s Day

Just In Case

We left Tanzania on the 2nd April, for a family holiday in Kenya. I would not return again.  When I eventually returned to the UK for treatment on the 18th April I came with a small bag of holiday clothes totally unsuited for the British Spring. I was able to add a small number of … Continue reading Just In Case

Doldrums

It would be fair to say that life is becoming routine. Six weeks after my return to England and three weeks after I was released from hospital there is a new equilibrium.  Life has changed do much in the past month and as the tornado disperses I am now finding myself in a calmer place … Continue reading Doldrums

Twenty Two Years

Today is our twenty second wedding anniversary. We are spending it over 4000 miles apart. The toughest part for both of us has been the trans-continental split in the family. We have been apart for over almost six weeks and will be for almost two months more. The challenge of the Myeloma and its treatments … Continue reading Twenty Two Years

Normalcy

This weekend has been a normal weekend in that it has been a weekend of doing normal things.  You might well wonder what is normal when you have spent much of the past three years, as I have in Tanzania? Actually not that different to the UK. it's been a normal weekend inasmuch as it … Continue reading Normalcy