Cutting The Lawn

It’s a small thing - probably something that most of you have done already this year. Certainly the lawn needed a good trim. However, for me it is a sign of a return to normality. Since last summer I really have not had the energy to contemplate much in the way of housework let alone … Continue reading Cutting The Lawn

Back Home

I was released from the Churchill Hospital at 4pm on Thursday with a large bag of medication, This included a two week dose of cefazolin, an antibiotic. This needed to be handed over to the dialysis nurses in the renal unit at MKUH where it would be used for intravenous application at the end of … Continue reading Back Home

Reaping the Benefits

I am beginning to see the benefits of regular dialysis. With the Tesier Line Fitted and the pain subsiding the dialysis sessions have gone well. I have yet to do a 4 hour session- yesterday’s session was shorter as they had had issues with other patients which meant I started an hour later. It wasn’t … Continue reading Reaping the Benefits

Christmas

I was sent home from Churchill hospital at 8:30pm on Christmas Eve. I had completed another 3 and a half hours of dialysis to follow the previous two and a half hours on 23rd December. Finally I was feeling normal. Better than I had in months. I could feel the energy. We got home about … Continue reading Christmas

The Longest Night

Today is the winter solstice. The shortest day of the year in terms of daylight. So conversely the longest period of night. My insomnia continues to be an issue and so for all but 18 minutes of last night I lay awake. You can imagine this ongoing sleep deprivation is shattering. I have three dialysis … Continue reading The Longest Night

Dialysis

Dialysis came early! A phone call yesterday morning following an email to my nurse invited me in for immediate dialysis. My health had definitely deteriorated in the last couple of days and the vomiting was the ‘straw which broke the camel’s back’ I was asked to come in at 2:30pm - problem no car! Our … Continue reading Dialysis

Bottom of a Bucket

Kidney Disease is so insidious. There are so many different symptoms which combine to make life difficult. The incessant itching and insomnia are bad enough. Now as my kidney approaches the end of its function (remember I only have one kidney!) not only has my appetite dropped through the floor but I am having trouble … Continue reading Bottom of a Bucket

Medication

As my kidney condition has moved towards its ultimate destination (End Stage Kidney Disease -ESKD) the range of medications needed to replace kidney function has both changed and grown. My morning pot of meds has now become quite a mouthful. In addition there are meds to take with each meal and meds to take at … Continue reading Medication

Wide Awake

It’s just before 4am as I write this. The middle of yet another sleepless night. I have seen each hour of the night so far and it’s been like this for days now. The sleeping tablets (Amitriptyline) had limited effect and I have stopped taking them. Basically they made me drowsy but did not result … Continue reading Wide Awake

Race Against Time

It’s now three weeks since my Fistula operation. The procedure has been a success and the scar is healing well. Unfortunately my health has deteriorated somewhat. My kidney is very much in the last stage of Chronic Kidney Disease. I have a GFR of just 3. This is a measure of my kidney’s ability to … Continue reading Race Against Time

Fistula

Yesterday I travelled to Oxfordshire to the town of Banbury. The purpose of the journey was to undergo an operation on my arm to create a Fistula. The first stage of a process which will lead to Dialysis. The past couple of weeks have been challenging as I have come to terms with the magnitude … Continue reading Fistula

It’s rather irritating!

It’s virtually continuous and can strike anywhere on the body. It is often much worse at night, and has made it difficult to sleep. Imagine itching all over, the urge to scratch at the skin but with limited relief. This is one of the many effects of Chronic Kidney Disease. There are no obvious rashes … Continue reading It’s rather irritating!

Pressure Tactics

One of the side effects of Myeloma is Kidney Disease and one of the results of poor kidney function is high blood pressure. Although the Myeloma has remained in remission, my kidney function has remained low and since May (when I was briefly in hospital) my kidney function has been much less than in previous … Continue reading Pressure Tactics

Batteries Drained

I can’t remember when I last felt this tired. No energy at all and I haven’t really done anything today. This Covid-19 is no joke! Having been double jabbed these are no doubt reduced symptoms- more like flu. However, the extreme fatigue is not pleasant. I still have smell and taste, otherwise the cough has … Continue reading Batteries Drained