Medication

As my kidney condition has moved towards its ultimate destination (End Stage Kidney Disease -ESKD) the range of medications needed to replace kidney function has both changed and grown. My morning pot of meds has now become quite a mouthful. In addition there are meds to take with each meal and meds to take at … Continue reading Medication

Wide Awake

It’s just before 4am as I write this. The middle of yet another sleepless night. I have seen each hour of the night so far and it’s been like this for days now. The sleeping tablets (Amitriptyline) had limited effect and I have stopped taking them. Basically they made me drowsy but did not result … Continue reading Wide Awake

Race Against Time

It’s now three weeks since my Fistula operation. The procedure has been a success and the scar is healing well. Unfortunately my health has deteriorated somewhat. My kidney is very much in the last stage of Chronic Kidney Disease. I have a GFR of just 3. This is a measure of my kidney’s ability to … Continue reading Race Against Time

Fistula

Yesterday I travelled to Oxfordshire to the town of Banbury. The purpose of the journey was to undergo an operation on my arm to create a Fistula. The first stage of a process which will lead to Dialysis. The past couple of weeks have been challenging as I have come to terms with the magnitude … Continue reading Fistula

It’s rather irritating!

It’s virtually continuous and can strike anywhere on the body. It is often much worse at night, and has made it difficult to sleep. Imagine itching all over, the urge to scratch at the skin but with limited relief. This is one of the many effects of Chronic Kidney Disease. There are no obvious rashes … Continue reading It’s rather irritating!

Pressure Tactics

One of the side effects of Myeloma is Kidney Disease and one of the results of poor kidney function is high blood pressure. Although the Myeloma has remained in remission, my kidney function has remained low and since May (when I was briefly in hospital) my kidney function has been much less than in previous … Continue reading Pressure Tactics

Batteries Drained

I can’t remember when I last felt this tired. No energy at all and I haven’t really done anything today. This Covid-19 is no joke! Having been double jabbed these are no doubt reduced symptoms- more like flu. However, the extreme fatigue is not pleasant. I still have smell and taste, otherwise the cough has … Continue reading Batteries Drained

I’ve got the Big ‘C’ ….. but not that one!

The diagnosis came through this afternoon. After months of keeping clear of it I have tested positive. Positive for Covid. I think it was inevitable - working in a secondary school in England, where we have few restrictions means that Covid is spreading. Schools are the new hotbed of disease and I encounter hundreds of … Continue reading I’ve got the Big ‘C’ ….. but not that one!

So Irritating

It's just over a week since I was released from hospital. It has been great to be out. After the excitement of the trip to A&E last weekend the rest of the week was uneventful as my temperature returned to normal. On Thursday I visited my consultant back in Lincoln. She was very pleased with … Continue reading So Irritating

Changing Tastes

One of the strangest outcomes of my recent chemotherapy is the effect upon my appetite and tastes. This maybe partly due to the hospital food, which was not particularly appetising. However, during my most neutropenic period I lost all desire for food. One of the effects of the Melphalan is to strip the lining of … Continue reading Changing Tastes

Ups and downs

This past 24 hours I have started to feel more unwell. This has mainly been a low level nausea and an accompanying headache. I have completely lost my appetite and find it particularly hard to eat any form of meat. I have been given anti- sickness and anti-diarrhoea medicines which has helped. My mouth and … Continue reading Ups and downs

Neutropenic

I am now neutropenic. This means that there has been a significant drop in the number of neutrophils in my blood stream. Neutrophils are a particular type of white blood cell which are used as part of the bodies immune system. The neutrophils contain sacks of enzymes which digest microorganisms. The effect of the Melphalan … Continue reading Neutropenic

Day Zero

Day zero is the name given to the day of your stem cell transplant. This will happen this afternoon, 48 hours exactly after my chemotherapy took place. The extra day has been to allow my kidney time to flush the Melphalan out of my body, so it won't kill the newly introduced stem cells. I … Continue reading Day Zero