New Year’s Eve

Up at 6am this morning ready to leave the house by 7am for the hours journey to the Churchill. I am back here today to undergo a procedure. This morning I am being fitted with a Tesier Line. This will enable dialysis in the medium term whilst they create a new Fistula and allow it … Continue reading New Year’s Eve

Christmas

I was sent home from Churchill hospital at 8:30pm on Christmas Eve. I had completed another 3 and a half hours of dialysis to follow the previous two and a half hours on 23rd December. Finally I was feeling normal. Better than I had in months. I could feel the energy. We got home about … Continue reading Christmas

Christmas Eve

I am in the Churchill Hospital in Oxford. I was admitted yesterday following the failure of my Fistula. Last night a temporary line was fitted to my groin so I could undertake dialysis. They did two and a half hours dialysis. Today they plan to do four more hours dialysis. Also today they plan to … Continue reading Christmas Eve

Fistula Failure!

My fistula has stoped working! I went for dialysis yesterday and due to the bruising on my arm they needed to do a single needle dialysis. The bruising was caused during my second dialysis and is due to the Fistula being new and not fully matured. The problem With single needle dialysis is that it … Continue reading Fistula Failure!

The Longest Night

Today is the winter solstice. The shortest day of the year in terms of daylight. So conversely the longest period of night. My insomnia continues to be an issue and so for all but 18 minutes of last night I lay awake. You can imagine this ongoing sleep deprivation is shattering. I have three dialysis … Continue reading The Longest Night

Dialysis

Dialysis came early! A phone call yesterday morning following an email to my nurse invited me in for immediate dialysis. My health had definitely deteriorated in the last couple of days and the vomiting was the ‘straw which broke the camel’s back’ I was asked to come in at 2:30pm - problem no car! Our … Continue reading Dialysis

Bottom of a Bucket

Kidney Disease is so insidious. There are so many different symptoms which combine to make life difficult. The incessant itching and insomnia are bad enough. Now as my kidney approaches the end of its function (remember I only have one kidney!) not only has my appetite dropped through the floor but I am having trouble … Continue reading Bottom of a Bucket

Under Attack!

The phrase “it never rains but it pours” describes the current situation in my family at the moment. This blog post is a bit different as it concerns not just me but many of those in my family. It would be true to say we are under attack. For those of you who share my … Continue reading Under Attack!

Medication

As my kidney condition has moved towards its ultimate destination (End Stage Kidney Disease -ESKD) the range of medications needed to replace kidney function has both changed and grown. My morning pot of meds has now become quite a mouthful. In addition there are meds to take with each meal and meds to take at … Continue reading Medication