Mum

Today is a day of celebration. It's Mum's birthday and I won't say how many years. It also marks the end of my time in Lincoln as later this weekend I will return to MK. I can't express how grateful I am to Mum for providing a home for me over much of these past … Continue reading Mum

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Still Here!

It has been a fortnight since I left hospital and for now I remain in Lincoln. The plan however is to return to MK at the weekend and transfer medically to that region. Life has been somewhat mundane and little has happened. Time has blurred. I have been on several walks in the local nature … Continue reading Still Here!

So Irritating

It's just over a week since I was released from hospital. It has been great to be out. After the excitement of the trip to A&E last weekend the rest of the week was uneventful as my temperature returned to normal. On Thursday I visited my consultant back in Lincoln. She was very pleased with … Continue reading So Irritating

A Trip to A&E

It had been a good day. Anita and my daughter had been up to visit and we'd had a nice walk around Whisby Nature Reserve. I was feeling tired but good. Glad to be out. At about 8pm I began to feel nauseous and sadly emptied my stomach. Taking my temperature, it was 38.3°C. I … Continue reading A Trip to A&E

Why Lincoln?

I was released from hospital a day earlier than expected and given transport back to Lincoln. It is here I will be staying for the coming few weeks as I recuperate. Lincoln is my family home. It is also the UK hospital where I was first diagnosed and treated for Myeloma. When my wife (Anita)  … Continue reading Why Lincoln?

For the Chop

In just three days I have lost most of my hair. The speed of this had perhaps been the most surprising thing to have happened in the whole treatment process. Sunday Monday Tuesday Wednesday Though it will eventually grow back, there will be a substantial period of baldness or partial baldness for as much as … Continue reading For the Chop

Transfusion

The featured image shows my room from the outside. The long thin widows nearest to the grey tiled building are mine. As my neutrophils have continued to rise up to 0.6 at last count. The engrafted stem cells developing into neutrophils, red blood cells and platelets among other things. I have also had GCSF injections … Continue reading Transfusion

Night Light

Could you sleep in a room which was as brightly lit as this? I imagine not. Yet this is what I'm supposed to do tonight. Some bright spark electrician decided to 'fix' the lighting this afternoon, The result, one of my lights does not go off. In truth that's not completely true. It does go … Continue reading Night Light

Hot and Cold

As I reach the bottom of the neutropenia curve, I am experiencing temperature fluctuations. Although generally I feel cold I have actually had a temperature of 38°C or above on a couple of occasions in the past two nights. This has required urgent action. Last night at 1am I was having blood extracted for culture … Continue reading Hot and Cold

Ups and downs

This past 24 hours I have started to feel more unwell. This has mainly been a low level nausea and an accompanying headache. I have completely lost my appetite and find it particularly hard to eat any form of meat. I have been given anti- sickness and anti-diarrhoea medicines which has helped. My mouth and … Continue reading Ups and downs

Neutropenic

I am now neutropenic. This means that there has been a significant drop in the number of neutrophils in my blood stream. Neutrophils are a particular type of white blood cell which are used as part of the bodies immune system. The neutrophils contain sacks of enzymes which digest microorganisms. The effect of the Melphalan … Continue reading Neutropenic