The blackbird chirps away behind my window. Gladly greeting the morning. Regret not taking the sleeping tablet. It's been a steroid sleep. Wakeful hours. Toilet trips. Soon the midsummer sun will rise. A new day. An Abingdon day. Here to celebrate. A birthday. Nineteen Years on. Happy Birthday Son!
People often say that I look well and in many ways I feel healthy and look reasonably well, but Myeloma can be a deceptive disease. Deep within my body there are lots of things going on and the drugs needed to control these processes are numerous. At the moment my main concerns remain Kidney function - [...]
Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]
Alongside the Myeloma and it's associated Kidney problems the other ongoing issue remains my blood. When I arrived back in the U.K. In April I returned with a DVT. Since that time, there had been a process of managing the clot by thinning the blood. Initially the use of Heparin and latterly the use of [...]
Looking back it would be difficult to identify when I first contracted Myeloma. It seems fair to say it was around before I noticed my shoulder back last December. Multiple Myeloma begins when cells in the bone marrow are subjected to external factors which might be environmental or chemical in origin and may be linked [...]
I have a new ally in the fight against sleeplessness. Following several weeks of disrupted sleep I have got prescribed some sleeping tablets. So welcome on board a new drug to be taken as and when necessary. The drug is Zoplicone. The drug has the advantage of helping me to sleep without leaving me drowsy [...]
A contribution to this week's photo challenge :Order Each Tuesday and Friday it's the same routine at Clinic 7. You are given a number and you wait to be called to give blood for testing, followed by a check up (blood pressure, temperature and a short questionnaire designed to measure neuropathy. The blood readings then [...]
An itchy feeling in the nose. A tingling in the throat. There is no doubt about it there is a cold coming. Statistically people with multiple myeloma are 15 x more likely to pick up infections than those without. At this stage the symptoms are mild but I need to watch my temperature carefully - [...]
A contribution to this week's photo challenge :Order My daily routine of pill popping requires an order. There are a range of drugs to be taken including those for kidney function, chemotherapy and blood thinning.
As the chemotherapy treatment progresses there are signs of some of the side effects becoming manifest. One of these is Peripheral Neuropathy. This term describes damage to the nerves in the hands, feet, arms and legs and is both a symptom of Myeloma and it's treatment with Valcade (Bortezomib) and other chemotherapy drugs such as [...]
It's 3am. I should be fast asleep I am not. I've tossed and turned in vain. My stomach in knots. The morning is still far off. I await the grey of dawn. Another day. This is the longest I've been ill. A lack of feeling whole. It seems never ending Will I ever be well [...]
It is the end of my second cycle of chemotherapy and I enter into my chemo free week. This brings mixed blessings - firstly there are no steroids to take so that I shall hopefully be able to get better sleep as the week wears on. There are no Valcade injections so less trips to [...]
Progress is being made and I continue to remain healthy and better than I have been for several months in so many ways. The chemotherapy is working but there is a battle going on, inside a drugs war against my very own mutant cells. The bad guys, Myeloma Cells, are being taken out but there [...]
A submission to this week's photo challenge: Friend. Taken outside the Fish Market in Mwanza last November. We were on a walk around the lakeside peninsular with Fiona, a walking friend, when we came across these guys drinking Kahawa (coffee) - they invited us to join us in a brew and we enjoyed several steaming [...]