Bottom of a Bucket

Kidney Disease is so insidious. There are so many different symptoms which combine to make life difficult. The incessant itching and insomnia are bad enough. Now as my kidney approaches the end of its function (remember I only have one kidney!) not only has my appetite dropped through the floor but I am having trouble … Continue reading Bottom of a Bucket

Under Attack!

The phrase “it never rains but it pours” describes the current situation in my family at the moment. This blog post is a bit different as it concerns not just me but many of those in my family. It would be true to say we are under attack. For those of you who share my … Continue reading Under Attack!

Combatting the Kidney Crusher!

When I started this blog in 2017. The principle manifestation of the Myeloma seemed to be orthopaedic ie related to my bones - I had developed lesions in various bones indicative of the actions of the Myeloma over the previous months. Hence, the title of the Blog was Battling the Bone Breaker. In truth, the … Continue reading Combatting the Kidney Crusher!

Pressure Tactics

One of the side effects of Myeloma is Kidney Disease and one of the results of poor kidney function is high blood pressure. Although the Myeloma has remained in remission, my kidney function has remained low and since May (when I was briefly in hospital) my kidney function has been much less than in previous … Continue reading Pressure Tactics

Batteries Drained

I can’t remember when I last felt this tired. No energy at all and I haven’t really done anything today. This Covid-19 is no joke! Having been double jabbed these are no doubt reduced symptoms- more like flu. However, the extreme fatigue is not pleasant. I still have smell and taste, otherwise the cough has … Continue reading Batteries Drained

I’ve got the Big ‘C’ ….. but not that one!

The diagnosis came through this afternoon. After months of keeping clear of it I have tested positive. Positive for Covid. I think it was inevitable - working in a secondary school in England, where we have few restrictions means that Covid is spreading. Schools are the new hotbed of disease and I encounter hundreds of … Continue reading I’ve got the Big ‘C’ ….. but not that one!

The Boy in the Bed

In a ward of grumpy old men there was one who was much younger. Almost half my age (a little over 30) but looking half of even this. Severely disabled he did not speak, face mask to aid breathing up often removed with deliberate yet uncontrolled hands. Whatever his needs they were mental and physical … Continue reading The Boy in the Bed

“Out of the Blue”

It’s been over three years since my last post. I have remained in good health, survived Covid unscathed and been doubly vaccinated. Held down a full-time teaching job. I have continued to have bimonthly haematology consultations and twice yearly renal consultations together with associated blood tests. Everything has been stable until this week …. My … Continue reading “Out of the Blue”

Zero Coke and Minimum Pepsi

Last week I had what was undoubtedly the best renal consultation in a year. I had scheduled a day of appointments with a visit to my new renal consultant at 9am followed later in the day by a scheduled appointment with my Haematology consultant at 1:15. It made for a long, but ultimately productive day, … Continue reading Zero Coke and Minimum Pepsi

Where I’m At

Time ticks on and there has been little to say in recent weeks. Both my wife and I remain off work on sick leave, following her heart attack and my slow recovery from the stem cell transplant. We both are recovering well and have started to do a little more as we gear up for … Continue reading Where I’m At

Dem Bones

As part of assessing my progress post transplant, today it was necessary to take a bone biopsy. This is standard procedure in Milton Keynes where I am now registered. It takes place three months after stem cell transplant. It is not the first time I have had this done. Way back in April last year, … Continue reading Dem Bones