Free

I'm free. I have no scheduled appointments at hospital for many weeks ahead. 😃 Today I met with my consultant who does not need to see me again until October, after my Stem Cell transplantation has taken place. That leaves only my scheduled stem cell harvesting in late August and the transplantation in early October.  [...]

Next Steps

Today I went to Nottingham. This important visit was to meet with the medical team at Nottingham City Hospital who are overseeing the next phase of my treatment. That being the production, extraction and reinsertion of my stem cells back into my body either side of some intensive chemotherapy to destroy the remaining Myeloma cells. [...]

Hb, WBC, Plts & Neuts?

Each Tuesday and Friday they take blood. This is sent to Haematology for testing ahead of my Valcade injections.  The values obtained determine the dose of Valcade, though in practice they work in arrears i.e. Today's Valcade relies on Tuesday's results. What are they measuring? My booklet records 4 values denoted Hb, WBC, Plts and [...]

Progress

Today I have met with my consultant. We meet every three weeks at the end of a chemotherapy cycle. A chance to touch base and reflect on progress. I have just completed my third cycle of chemotherapy and so approximately half way through the process or so I believed. It turns out that I have [...]

Dawn Chorus

The blackbird chirps away behind my window. Gladly greeting the morning. Regret not taking the sleeping tablet. It's been a steroid sleep. Wakeful hours. Toilet trips. Soon the midsummer sun will rise. A new day. An Abingdon day. Here to celebrate. A birthday. Nineteen Years on. Happy Birthday Son!

New Routine….Same Wait

Chemo routine subtly changed. Still Tuesdays and  Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions  Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down  Nurses short Pharmacy slow Some things don't change. Waiting.

Pins & Needles

As the chemotherapy treatment progresses there are signs of some of the side effects becoming manifest. One of these is Peripheral Neuropathy. This term describes damage to the nerves in the hands, feet, arms and legs and is both a symptom of Myeloma and it's treatment with Valcade (Bortezomib) and other chemotherapy drugs such as [...]