It's become a weekly ritual. The two hour journey up the motorway to Nottingham. Parking the car at the Wilkinson Street Park and Ride before catching the Medilink bus. I have come to the city hospital for a meeting with my consultant ahead of a scheduled admission into the hospital some time next week for [...]
Today I was back in Nottingham for a support meeting ahead of my Stem Cell implantation scheduled for the week of 23rd October. This meeting held at Maggie's Centre on the Hospital Campus was aimed at informing the process to come and consider the after care. Patients and their families were encouraged to come and [...]
I am writing this from bed where I have spent much of the past two days. On Sunday night I felt the telltale signs of an oncoming cold. I think normally I would probably carry on, but this time it has been different. The cold has 'knocked me for six'. The persistent cough and runny [...]
Today I had a mammoth trip to Lincoln County Hospital meeting with two consultants as well as having my Hickman Line checked and prescriptions issued. All in all I spent four and a half hours in hospital, but unlike previous visits there was relatively little waiting. The day began at 9:40 when I arrived at [...]
The ongoing effect of my poor kidney function on my treatment. Yesterday in Nottingham I met with my consultant to consider the final phase of treatment which would again involve a high dose of chemotherapy followed by stem cell implantation. This was scheduled for October but has now been put on hold. Read more by clicking the title.
For the second time in three months I have attended the funeral of a friend who has died of cancer. Another peer (a year younger than me) who succumbed to this dreadful illness.Pete was externally positive and always thinking of others. Today's funeral was as much celebration as anything else. The church was packed and [...]
I'm free. I have no scheduled appointments at hospital for many weeks ahead. 😃 Today I met with my consultant who does not need to see me again until October, after my Stem Cell transplantation has taken place. That leaves only my scheduled stem cell harvesting in late August and the transplantation in early October. [...]
Today I went to Nottingham. This important visit was to meet with the medical team at Nottingham City Hospital who are overseeing the next phase of my treatment. That being the production, extraction and reinsertion of my stem cells back into my body either side of some intensive chemotherapy to destroy the remaining Myeloma cells. [...]
This morning I have reached a milestone. I am here at Ingham Suite for my last Valcade Injection. This is the chemotherapy drug which I have been taking twice a week for the past three months. For once I didn't need to have my bloods done, this has quickened the whole process. Monday's trip to [...]
I'm here at the dentist. As if I didn't spend enough time with the medical profession these days. It's hard to believe that I only used to visit the doctor once a year at best for Hay Fever prescriptions. I'm here for a check up, but in reality I'm joining the dentist as I gave [...]
Each Tuesday and Friday they take blood. This is sent to Haematology for testing ahead of my Valcade injections. The values obtained determine the dose of Valcade, though in practice they work in arrears i.e. Today's Valcade relies on Tuesday's results. What are they measuring? My booklet records 4 values denoted Hb, WBC, Plts and [...]
I can confirm that I have begun my last cycle.
Today I have met with my consultant. We meet every three weeks at the end of a chemotherapy cycle. A chance to touch base and reflect on progress. I have just completed my third cycle of chemotherapy and so approximately half way through the process or so I believed. It turns out that I have [...]
In the English vernacular" I'm knackered". After three days out of the last four days on the road I'm exhausted. A sign of my illness no doubt as well as the variable sleep patterns over the weekend. I had enough energy to walk to the doctor for my weekly INR this morning where my blood [...]
It's nice to get away. To break the shackles of the chemotherapy weeks. The biweekly trips to clinic 7 and Ingham award which force me to be in Lincoln. Every third week is a week off - it's a small respite as Instill need to visit my consultant on Thursday but it frees up the [...]