Monday, Wednesday, Friday Nights

The routine is well embedded. It doesn’t matter if it’s the holidays or if I’m off work (through illness or other reasons) as I am today. Every Monday , Wednesday and Friday I leave home at 4:30pm to arrive here at 5pm for four hours of dialysis. prior to departure about an hour before, I … Continue reading Monday, Wednesday, Friday Nights

Filling in the Blanks

I realise that between May and December of last year I somewhat neglected this blog so this is an attempt to fill in the blanks. In May I took up Couch to 5K and made good and steady progress reaching Week 8 and completing several 30 min runs. I was doing really well until at … Continue reading Filling in the Blanks

Bed Blocking

Sadly all has come to naught. They had the kidney, the tests were good but they had no beds. At 6:30pm the surgeon came to see me. She was extremely frustrated. After hours of negotiations and fighting for a bed they had one. However, the patient who was due to be discharged had developed complications. … Continue reading Bed Blocking

The List

Today has not turned out as expected. Today I have had the call. The long expected call. The potential transplant has arrived. I have been on the transplant list since the Spring, but the list was backdated to last December (when dialysis started). The Oxford team predicted that within a year I would get the … Continue reading The List

Back Home

I was released from the Churchill Hospital at 4pm on Thursday with a large bag of medication, This included a two week dose of cefazolin, an antibiotic. This needed to be handed over to the dialysis nurses in the renal unit at MKUH where it would be used for intravenous application at the end of … Continue reading Back Home

‘Done and Dusted‘

I have just returned to my room having had my first four hour dialysis in my new fistula. This fistula fitted on the 13th Jan performed really well for 9 weeks. The whole process was very smooth. The annoying thing is that for almost five hours (I’ll explain the extra hour later) I had To … Continue reading ‘Done and Dusted‘

Churchill Transfer and Tesio Lines

I’ve been unwell for a few days now. This first manifested at dialysis last Wednesday and again on Friday when I had uncontrollable shivers. Bloods were taken and cultured, I was admitted to MKUH, where I stayed until yesterday. At the weekend the bloods taken from my line, and from my arm were grown to … Continue reading Churchill Transfer and Tesio Lines

It was all going so smoothly and then…

I have got into a routine. Every Monday, Wednesday and Friday I head off to MKUH at about 5:30pm for dialysis. Generally I am on from about 6:30pm until 10:30pm. The exception is Monday where generally I am on fom 7:00pm to 11:00pm. During my 4 hours dialysis I will listen to music or watch … Continue reading It was all going so smoothly and then…

Another Day Another Op

So today I have been back in the Foscote Hospital Banbury. I am here for a second Fistula operation. The first fistula unfortunately failed after a few dialysis sessions. There was an attempt to repair the fistula on Christmas Eve but this was unsuccessful. So on New Years Eve I had another operation to fit … Continue reading Another Day Another Op

New Year’s Eve

Up at 6am this morning ready to leave the house by 7am for the hours journey to the Churchill. I am back here today to undergo a procedure. This morning I am being fitted with a Tesier Line. This will enable dialysis in the medium term whilst they create a new Fistula and allow it … Continue reading New Year’s Eve

Christmas

I was sent home from Churchill hospital at 8:30pm on Christmas Eve. I had completed another 3 and a half hours of dialysis to follow the previous two and a half hours on 23rd December. Finally I was feeling normal. Better than I had in months. I could feel the energy. We got home about … Continue reading Christmas

Christmas Eve

I am in the Churchill Hospital in Oxford. I was admitted yesterday following the failure of my Fistula. Last night a temporary line was fitted to my groin so I could undertake dialysis. They did two and a half hours dialysis. Today they plan to do four more hours dialysis. Also today they plan to … Continue reading Christmas Eve

Fistula Failure!

My fistula has stoped working! I went for dialysis yesterday and due to the bruising on my arm they needed to do a single needle dialysis. The bruising was caused during my second dialysis and is due to the Fistula being new and not fully matured. The problem With single needle dialysis is that it … Continue reading Fistula Failure!

Fistula

Yesterday I travelled to Oxfordshire to the town of Banbury. The purpose of the journey was to undergo an operation on my arm to create a Fistula. The first stage of a process which will lead to Dialysis. The past couple of weeks have been challenging as I have come to terms with the magnitude … Continue reading Fistula

How Things Stand! – Big Changes On the Way

I haven’t been well for some time it seems. Since May my Kidney Function has fallen over a cliff. So much so that yesterday I travelled to the Renal Dialysis Assessment Unit at Churchill Hospital. This appointment was part of a process to Fast-Track me towards dialysis. I arrived just after 1pm and was promptly … Continue reading How Things Stand! – Big Changes On the Way