Today is my birthday and just as the year has turned, the turning of my age marks a new beginning. In other ways too it's a new beginning as this morning I have met with my new consultant in MK having transferred from Lincoln. They plan to monitor me monthly for the time being - … Continue reading New Beginnings
This post is scheduled for 9pm UK time which is coincident with the start of the New Year in Tanzania. 2017 is not a year I want to remember in so many ways and yet it will be hard to forget it too. It ended much the same way as it was spent i.e. in … Continue reading What a Year!
It had to happen eventually. I rather wish it hadn't happened at Christmas. In recent weeks I've been getting ready for the festivities. Present and food shopping and decorating the house. Making use of the extra time I have this year as I continue to recover from the effects of the chemotherapy. In the last … Continue reading Christmas Cold
Having moved back to MK at the beginning of December, I am now registered at a local GP and have an appointment in the New Year for a consultation in MK General Hospital. However, this morning I am back in Clinic 7 at Lincoln County Hospital for one last appointment. This scheduled appointment is really … Continue reading One Last Time
Today is a day of celebration. It's Mum's birthday and I won't say how many years. It also marks the end of my time in Lincoln as later this weekend I will return to MK. I can't express how grateful I am to Mum for providing a home for me over much of these past … Continue reading Mum
Today was a bit of an anti-climax. I was scheduled to visit the Renal department at Lincoln County Hospital to look at the options for dialysis, should the need arise. Though this is something I am hoping will not happen I nonetheless thought it best to be informed. I arrived at 9.40 and was seen … Continue reading Time Waster
It has been a fortnight since I left hospital and for now I remain in Lincoln. The plan however is to return to MK at the weekend and transfer medically to that region. Life has been somewhat mundane and little has happened. Time has blurred. I have been on several walks in the local nature … Continue reading Still Here!
It's just over a week since I was released from hospital. It has been great to be out. After the excitement of the trip to A&E last weekend the rest of the week was uneventful as my temperature returned to normal. On Thursday I visited my consultant back in Lincoln. She was very pleased with … Continue reading So Irritating
One of the strangest outcomes of my recent chemotherapy is the effect upon my appetite and tastes. This maybe partly due to the hospital food, which was not particularly appetising. However, during my most neutropenic period I lost all desire for food. One of the effects of the Melphalan is to strip the lining of … Continue reading Changing Tastes
It had been a good day. Anita and my daughter had been up to visit and we'd had a nice walk around Whisby Nature Reserve. I was feeling tired but good. Glad to be out. At about 8pm I began to feel nauseous and sadly emptied my stomach. Taking my temperature, it was 38.3°C. I … Continue reading A Trip to A&E
I was released from hospital a day earlier than expected and given transport back to Lincoln. It is here I will be staying for the coming few weeks as I recuperate. Lincoln is my family home. It is also the UK hospital where I was first diagnosed and treated for Myeloma. When my wife (Anita) … Continue reading Why Lincoln?
It was quite a surprise to be visited by the Professor (senior consultant) this morning and told I was leaving today. All week long the plan has been that Anita would pick me up Saturday and take me to Mum's in Lincoln. This had been agreed with doctors and nurses. I want to leave but … Continue reading Out
In just three days I have lost most of my hair. The speed of this had perhaps been the most surprising thing to have happened in the whole treatment process. Sunday Monday Tuesday Wednesday Though it will eventually grow back, there will be a substantial period of baldness or partial baldness for as much as … Continue reading For the Chop
The featured image shows my room from the outside. The long thin widows nearest to the grey tiled building are mine. As my neutrophils have continued to rise up to 0.6 at last count. The engrafted stem cells developing into neutrophils, red blood cells and platelets among other things. I have also had GCSF injections … Continue reading Transfusion
Could you sleep in a room which was as brightly lit as this? I imagine not. Yet this is what I'm supposed to do tonight. Some bright spark electrician decided to 'fix' the lighting this afternoon, The result, one of my lights does not go off. In truth that's not completely true. It does go … Continue reading Night Light