As my kidney condition has moved towards its ultimate destination (End Stage Kidney Disease -ESKD) the range of medications needed to replace kidney function has both changed and grown. My morning pot of meds has now become quite a mouthful. In addition there are meds to take with each meal and meds to take at … Continue reading Medication
It’s just before 4am as I write this. The middle of yet another sleepless night. I have seen each hour of the night so far and it’s been like this for days now. The sleeping tablets (Amitriptyline) had limited effect and I have stopped taking them. Basically they made me drowsy but did not result … Continue reading Wide Awake
It’s now three weeks since my Fistula operation. The procedure has been a success and the scar is healing well. Unfortunately my health has deteriorated somewhat. My kidney is very much in the last stage of Chronic Kidney Disease. I have a GFR of just 3. This is a measure of my kidney’s ability to … Continue reading Race Against Time
Yesterday I travelled to Oxfordshire to the town of Banbury. The purpose of the journey was to undergo an operation on my arm to create a Fistula. The first stage of a process which will lead to Dialysis. The past couple of weeks have been challenging as I have come to terms with the magnitude … Continue reading Fistula
It’s virtually continuous and can strike anywhere on the body. It is often much worse at night, and has made it difficult to sleep. Imagine itching all over, the urge to scratch at the skin but with limited relief. This is one of the many effects of Chronic Kidney Disease. There are no obvious rashes … Continue reading It’s rather irritating!
I haven’t been well for some time it seems. Since May my Kidney Function has fallen over a cliff. So much so that yesterday I travelled to the Renal Dialysis Assessment Unit at Churchill Hospital. This appointment was part of a process to Fast-Track me towards dialysis. I arrived just after 1pm and was promptly … Continue reading How Things Stand! – Big Changes On the Way
When I started this blog in 2017. The principle manifestation of the Myeloma seemed to be orthopaedic ie related to my bones - I had developed lesions in various bones indicative of the actions of the Myeloma over the previous months. Hence, the title of the Blog was Battling the Bone Breaker. In truth, the … Continue reading Combatting the Kidney Crusher!
Today is the last day of Covid isolation. I return to work tomorrow morning. Thankfully I’m feeling a lot better. For me Covid has been similar to a heavy cold as far a symptoms. I am left with a heavy cough and blocked nose but little else. During the past 10 days the biggest issue … Continue reading Day 10
Here in the UK you are currently required to self-isolate for 10 days following a positive Covid Diagnosis. I am now on Day 5. The halfway point. I’m starting to feel better overall. Those isolating in England are phoned regularly by someone in Track and Trace - I have been phoned three times. These calls … Continue reading Helping Out At Home
One of the side effects of Myeloma is Kidney Disease and one of the results of poor kidney function is high blood pressure. Although the Myeloma has remained in remission, my kidney function has remained low and since May (when I was briefly in hospital) my kidney function has been much less than in previous … Continue reading Pressure Tactics
I can’t remember when I last felt this tired. No energy at all and I haven’t really done anything today. This Covid-19 is no joke! Having been double jabbed these are no doubt reduced symptoms- more like flu. However, the extreme fatigue is not pleasant. I still have smell and taste, otherwise the cough has … Continue reading Batteries Drained
The diagnosis came through this afternoon. After months of keeping clear of it I have tested positive. Positive for Covid. I think it was inevitable - working in a secondary school in England, where we have few restrictions means that Covid is spreading. Schools are the new hotbed of disease and I encounter hundreds of … Continue reading I’ve got the Big ‘C’ ….. but not that one!
The Alexa speaker alarm goes off. It is 5:45am, in my usual workday routine I will listen to the radio (UCB1) whilst coming round and jump into the shower by 6:45am. Downstairs to eat breakfast and make lunch whilst listening to Radio 4, before leaving the house at 7:30am. It takes 25 mins to drive … Continue reading Back To Work
A reflection on the past few days
In a ward of grumpy old men there was one who was much younger. Almost half my age (a little over 30) but looking half of even this. Severely disabled he did not speak, face mask to aid breathing up often removed with deliberate yet uncontrolled hands. Whatever his needs they were mental and physical … Continue reading The Boy in the Bed