People often say that I look well and in many ways I feel healthy and look reasonably well, but Myeloma can be a deceptive disease. Deep within my body there are lots of things going on and the drugs needed to control these processes are numerous. At the moment my main concerns remain Kidney function - [...]
My Personal Fight with Multiple Myeloma
Today I had a mammoth trip to Lincoln County Hospital meeting with two consultants as well as having my Hickman Line checked and prescriptions issued. All in all I spent four and a half hours in hospital, but unlike previous visits there was relatively little waiting. The day began at 9:40 when I arrived at [...]
A second contribution to the photo challenge on the theme of Waiting In our new garden there are raspberry bushes and every few days we are able to harvest fresh raspberries- well worth the wait!
Last night there was a twilight lantern walk around Willen Lake in Milton Keynes. This was organised by Willen Hospice as a fundraiser and as a way of celebrating the life of those lost to cancer in 2017. With two friends (Pete and Rachel) having passed away this year it was an excellent way to [...]
One of the ongoing issues related to my myeloma and kidney function has been swelling in my feet. This has fluctuated a little but has generally been caused by the over retention of water in my body. Following a conversation with my nurse during recent stem cell treatment it emerged that I really should be [...]
A contribution to this week's photo challenge on the theme of Waiting In Africa you learn to wait. Whether its food at a restaurant where you might wait at least an hour after you order (the longest was three hours!) or as in this case waiting in traffic in one of the large cities. These [...]
The ongoing effect of my poor kidney function on my treatment. Yesterday in Nottingham I met with my consultant to consider the final phase of treatment which would again involve a high dose of chemotherapy followed by stem cell implantation. This was scheduled for October but has now been put on hold. Read more by clicking the title.
For years I have hated the first week of September- the return to work after the long summer break. The sudden imposition of schedules and meetings on what was free space. It always started with INSET days. Staff Training Days ahead of the pupils return. Necessary but for those who prefer to be at the [...]
A contribution to this week's photo challenge:Structure. Yesterday we had our first fog of the Autumn and with it the spider webs came out of hiding their structures displayed for all the world to see.
A contribution to this week's photo challenge:Structure. Hibiscus flowers from our garden in Tanzania and elsewhere in East Africa.
With the stem cell harvesting completed it's now a waiting game. I am due to return to Nottingham for a consultation on 11th Sept. to find out when exactly the final phase of treatment will take place, though tentatively it is to be in October in Nottingham. Neither the fitting of the Hickman Line nor [...]
My time in England has thrown up all sorts of reunions not just of people but of places. I chose to come to Lincoln as it was the family home and a good base while the family were in Tanzania. Then we were offered a house in Milton Keynes and my wife got her old [...]
Today is the day when my Stem Cells are to be harvested. I arrive at Nottingham City Hospital at just after 8:30am having dropped off the hire car. As ever there is the ubiquitous blood sample to check my white blood cell (neutrophil) count and then my stem cell count. My wounds are redressed and [...]
The image is of our new car which was parked on a straight piece of road facing oncoming traffic. We had called in on our way back from a weekend away in Cheddar where we had bought our new car and after a day in Chichester with our son. We needed a place for me [...]
Having been overseas for three years and having no intention of returning to Britain, it has been quite a shock to the system to be back here. Now, as we adjust to the reality, we are in the process of rebuilding our UK lives. Anita has secured her old job in Milton Keynes (in fact [...]
G-CSF is not some new exam system, but is in fact a medical treatment designed to boost the production of stem cells in the body. It stands for Granulocyte=colony stimulation factor - so you can see why it is better to use the acronym! Today I started a 5 day regime of G-CSF injections. I [...]