One Year

A year ago I was living in Mwanza. In fact, though I did not know it at the time, this day (April 1st) would be my last full day in Tanzania. A year ago tomorrow we would be heading off for a holiday in Kenya. However, Easter is a moveable feast and as such has … Continue reading One Year

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Zero Coke and Minimum Pepsi

Last week I had what was undoubtedly the best renal consultation in a year. I had scheduled a day of appointments with a visit to my new renal consultant at 9am followed later in the day by a scheduled appointment with my Haematology consultant at 1:15. It made for a long, but ultimately productive day, … Continue reading Zero Coke and Minimum Pepsi

One Last Time

Having moved back to MK at the beginning of December, I am now registered at a local GP and have an appointment in the New Year for a consultation in MK General Hospital. However, this morning I am back in Clinic 7 at Lincoln County Hospital for one last appointment. This scheduled appointment is really … Continue reading One Last Time

Still Here!

It has been a fortnight since I left hospital and for now I remain in Lincoln. The plan however is to return to MK at the weekend and transfer medically to that region. Life has been somewhat mundane and little has happened. Time has blurred. I have been on several walks in the local nature … Continue reading Still Here!

Get the Balance Right

The body is a complex organism. There are many chemical reactions going on inside of us all of the time and we never give it a second thought most of the time. As processes happen others are triggered which compensate and result in a consistent environment which keeps us healthy most of the time. Biologists … Continue reading Get the Balance Right

Day 0/1

Today has been busy, after a quieter morning. I managed to get reasonable sleep in spite of regular trips to the loo, due to the diuretics. They were worried I was retaining too much water, but the body is a complex organism and getting the balance is difficult. In recent days they have increased my … Continue reading Day 0/1

Ice Pops and Poison

It's a strange thing to sit here as I've just been poisoned for my own good. The chemotherapy has started. Melphalan has been injected and I'm sitting here sucking on an ice pop. I've not had one in years but it's a necessary medical treatment. The purpose is to keep my mouth and gut cool … Continue reading Ice Pops and Poison

Kidney Matters

This afternoon I met with the kidney consultant. His aim was firstly to assess me ahead of any potential chemotherapy/stem cell treatment in order to determine whether I needed dialysis first. Secondly to answer questions about the way forward. There are a number of different scenarios but before I delve into each one the answer … Continue reading Kidney Matters

Feeling Messed About

A phone call at 5pm last night has left me feeling a little messed about. The call from my consultant at Nottingham was to inform me that when I go in on Sunday or Monday they will not after all perform the chemotherapy. Instead Renal will look at my kidney to determine whether I will … Continue reading Feeling Messed About

Leaving a Bitter Taste in the Mouth

It was in February of this year I first noticed this. At the time I had no idea why. In the months since it has been a constant presence. Sometimes subtle, sometimes overwhelming. At its worst it has induced nausea. In Nairobi, just before the diagnosis of Myeloma it was acute. A bitter, salty, metallic … Continue reading Leaving a Bitter Taste in the Mouth

Nottingham

It's become a weekly ritual. The two hour journey up the motorway to Nottingham. Parking the car at the Wilkinson Street Park and Ride before catching the Medilink bus. I have come to the city hospital for a meeting with my consultant ahead of a scheduled admission into the hospital some time next week for … Continue reading Nottingham

Ill when you’re ill

I am writing this from bed where I have spent much of the past two days. On Sunday night I felt the telltale signs of an oncoming cold. I think normally I would probably carry on, but this time it has been different. The cold has 'knocked me for six'. The persistent cough and runny … Continue reading Ill when you’re ill