It's become a weekly ritual. The two hour journey up the motorway to Nottingham. Parking the car at the Wilkinson Street Park and Ride before catching the Medilink bus. I have come to the city hospital for a meeting with my consultant ahead of a scheduled admission into the hospital some time next week for [...]
I am writing this from bed where I have spent much of the past two days. On Sunday night I felt the telltale signs of an oncoming cold. I think normally I would probably carry on, but this time it has been different. The cold has 'knocked me for six'. The persistent cough and runny [...]
The ring of the alarm. 7 am Morning comes too soon. On a good night I've been up twice. But sometimes thrice. Early hours ablutions. Within minutes they are up. Wife an daughter. Showers, hairdryers, dressed, breakfast out. The hustle and bustle of a typical morning followed by Silence. The house is quiet. Maybe another [...]
Today I had a mammoth trip to Lincoln County Hospital meeting with two consultants as well as having my Hickman Line checked and prescriptions issued. All in all I spent four and a half hours in hospital, but unlike previous visits there was relatively little waiting. The day began at 9:40 when I arrived at [...]
One of the ongoing issues related to my myeloma and kidney function has been swelling in my feet. This has fluctuated a little but has generally been caused by the over retention of water in my body. Following a conversation with my nurse during recent stem cell treatment it emerged that I really should be [...]
The ongoing effect of my poor kidney function on my treatment. Yesterday in Nottingham I met with my consultant to consider the final phase of treatment which would again involve a high dose of chemotherapy followed by stem cell implantation. This was scheduled for October but has now been put on hold. Read more by clicking the title.
Tomorrow I travel to Nottingham for the first part of the second phase of my cancer treatment. It's now over a month since the end and of my chemotherapy, the first phase of my treatment. It's been great to spend much of the last five weeks away from the regular hospital appointments and consultations. The [...]
Today I went to Nottingham. This important visit was to meet with the medical team at Nottingham City Hospital who are overseeing the next phase of my treatment. That being the production, extraction and reinsertion of my stem cells back into my body either side of some intensive chemotherapy to destroy the remaining Myeloma cells. [...]
Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]
Alongside the Myeloma and it's associated Kidney problems the other ongoing issue remains my blood. When I arrived back in the U.K. In April I returned with a DVT. Since that time, there had been a process of managing the clot by thinning the blood. Initially the use of Heparin and latterly the use of [...]
An itchy feeling in the nose. A tingling in the throat. There is no doubt about it there is a cold coming. Statistically people with multiple myeloma are 15 x more likely to pick up infections than those without. At this stage the symptoms are mild but I need to watch my temperature carefully - [...]
As the chemotherapy treatment progresses there are signs of some of the side effects becoming manifest. One of these is Peripheral Neuropathy. This term describes damage to the nerves in the hands, feet, arms and legs and is both a symptom of Myeloma and it's treatment with Valcade (Bortezomib) and other chemotherapy drugs such as [...]
A progress update at the end of the second cycle.
Glomerular Filtration Rate (GFR) is a measure of the effectiveness of the kidney function. The basic job of the kidney is to filter the waste from the blood supply and produce a filtrate which goes on to form urine. The GFR is determined from blood samples which I have taken twice a week. This is [...]
Three weeks on from my previous Sunday Summary and a chance to take stock of where things are. This is a summary which is a good stopping off point if you are interested but don't want to wade through all my posts. I am now very much out of hospital and undergoing chemotherapy as an outpatient. I [...]