Nottingham

It's become a weekly ritual. The two hour journey up the motorway to Nottingham. Parking the car at the Wilkinson Street Park and Ride before catching the Medilink bus. I have come to the city hospital for a meeting with my consultant ahead of a scheduled admission into the hospital some time next week for [...]

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Renal etc

Today I had a mammoth trip to Lincoln County Hospital meeting with two consultants as well as having my Hickman Line checked and prescriptions issued. All in all I spent four and a half hours in hospital, but unlike previous visits there was relatively little waiting. The day began at 9:40 when I arrived at [...]

Kidney Conundrum

The ongoing effect of my poor kidney function on my treatment. Yesterday in Nottingham I met with my consultant to consider the final phase of treatment which would again involve a high dose of chemotherapy followed by stem cell implantation. This was scheduled for October but has now been put on hold. Read more by clicking the title.

In Between Days

Tomorrow I travel to Nottingham for the first part of the second phase of my cancer treatment. It's now over a month since the end and of my chemotherapy, the first phase of my treatment. It's been great to spend much of the last five weeks away from the regular hospital appointments and consultations. The [...]

Next Steps

Today I went to Nottingham. This important visit was to meet with the medical team at Nottingham City Hospital who are overseeing the next phase of my treatment. That being the production, extraction and reinsertion of my stem cells back into my body either side of some intensive chemotherapy to destroy the remaining Myeloma cells. [...]

Be Aware!

Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today.  The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]

Pins & Needles

As the chemotherapy treatment progresses there are signs of some of the side effects becoming manifest. One of these is Peripheral Neuropathy. This term describes damage to the nerves in the hands, feet, arms and legs and is both a symptom of Myeloma and it's treatment with Valcade (Bortezomib) and other chemotherapy drugs such as [...]

Sunday Summary – 28th May (Symptoms)

Three weeks on from my previous Sunday Summary and a chance to take stock of where things are. This is a summary which is a good stopping off point if you are interested but don't want to wade through all my posts. I am now very much out of hospital and undergoing chemotherapy as an outpatient. I [...]