It's nice to get away. To break the shackles of the chemotherapy weeks. The biweekly trips to clinic 7 and Ingham award which force me to be in Lincoln. Every third week is a week off - it's a small respite as Instill need to visit my consultant on Thursday but it frees up the [...]
The blackbird chirps away behind my window. Gladly greeting the morning. Regret not taking the sleeping tablet. It's been a steroid sleep. Wakeful hours. Toilet trips. Soon the midsummer sun will rise. A new day. An Abingdon day. Here to celebrate. A birthday. Nineteen Years on. Happy Birthday Son!
People often say that I look well and in many ways I feel healthy and look reasonably well, but Myeloma can be a deceptive disease. Deep within my body there are lots of things going on and the drugs needed to control these processes are numerous. At the moment my main concerns remain Kidney function - [...]
Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Since returning to the UK I have put on weight. This is a combination of the steroids Inhave needed to take, the water retention courtesy of my kidney problems and DVT, richer food and a lack of exercise brought on by the enforced bed rest as an inpatient and the effects of the Myeloma. In [...]
A submission to this week's photo challenge: Transient At Easter before Inreturned for treatment I was on holiday in Diani Beach near Mombassa staying at SiltsBackpackers. This is famed for its nightly Bush Baby feeding - where these otherwise shy nocturnal primates have enjoy a nightly banana feed on tbe balcony. They are there for only [...]
Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]
Trying to do two things at once! A submission to this week's photo challenge on the theme of Focus
Alongside the Myeloma and it's associated Kidney problems the other ongoing issue remains my blood. When I arrived back in the U.K. In April I returned with a DVT. Since that time, there had been a process of managing the clot by thinning the blood. Initially the use of Heparin and latterly the use of [...]
Looking back it would be difficult to identify when I first contracted Myeloma. It seems fair to say it was around before I noticed my shoulder back last December. Multiple Myeloma begins when cells in the bone marrow are subjected to external factors which might be environmental or chemical in origin and may be linked [...]
For the first time in living memory I am a Father alone on Father's Day. I know it's a commercial thing (unlike Mothering Sunday) but even so it has amplified the absence of family. My own Father died in 2006 of Motor Nueron Disease a rapidly developing disease which took him from an active man [...]
A submission to this week's photo challenge : Focus. Taking photos of the night sky is difficult - my Canon EOS 70D needed a lot of tweaking to get something and in truth my inexperience got less than focused shots of the sky on that occasion. It was however, too good an opportunity to miss [...]
In 1984 I needed a summer job. I'd left school and wanted to earn some cash before I went to Nottingham University. I ended up getting a job as a Domestic Assistant (Cleaner) at the newly built wing of Lincoln County Hospital. My role along with a team of other young people was to clean [...]
It seems hard to believe that I have been back in the U.K. for two months. I arrived on the day they called an election, which has now passed. I arrived just after Easter and now the summer Hilidays are fast approaching. Today at my school in Tanzania they will hold Prize Night that end [...]
One thing I am enjoying here in the U.K. has been the arrival of Spring / Summer flowers. Funnily enough the lack of seasonality in Tanzania means that flowers are quite sparse. The trees and bushes are in a continual state of bud, flower, seed, death but individual flowers are around for a short time [...]