It’s virtually continuous and can strike anywhere on the body. It is often much worse at night, and has made it difficult to sleep. Imagine itching all over, the urge to scratch at the skin but with limited relief. This is one of the many effects of Chronic Kidney Disease. There are no obvious rashes … Continue reading It’s rather irritating!
I haven’t been well for some time it seems. Since May my Kidney Function has fallen over a cliff. So much so that yesterday I travelled to the Renal Dialysis Assessment Unit at Churchill Hospital. This appointment was part of a process to Fast-Track me towards dialysis. I arrived just after 1pm and was promptly … Continue reading How Things Stand! – Big Changes On the Way
When I started this blog in 2017. The principle manifestation of the Myeloma seemed to be orthopaedic ie related to my bones - I had developed lesions in various bones indicative of the actions of the Myeloma over the previous months. Hence, the title of the Blog was Battling the Bone Breaker. In truth, the … Continue reading Combatting the Kidney Crusher!
Today is the last day of Covid isolation. I return to work tomorrow morning. Thankfully I’m feeling a lot better. For me Covid has been similar to a heavy cold as far a symptoms. I am left with a heavy cough and blocked nose but little else. During the past 10 days the biggest issue … Continue reading Day 10
Here in the UK you are currently required to self-isolate for 10 days following a positive Covid Diagnosis. I am now on Day 5. The halfway point. I’m starting to feel better overall. Those isolating in England are phoned regularly by someone in Track and Trace - I have been phoned three times. These calls … Continue reading Helping Out At Home
One of the side effects of Myeloma is Kidney Disease and one of the results of poor kidney function is high blood pressure. Although the Myeloma has remained in remission, my kidney function has remained low and since May (when I was briefly in hospital) my kidney function has been much less than in previous … Continue reading Pressure Tactics
I can’t remember when I last felt this tired. No energy at all and I haven’t really done anything today. This Covid-19 is no joke! Having been double jabbed these are no doubt reduced symptoms- more like flu. However, the extreme fatigue is not pleasant. I still have smell and taste, otherwise the cough has … Continue reading Batteries Drained
The diagnosis came through this afternoon. After months of keeping clear of it I have tested positive. Positive for Covid. I think it was inevitable - working in a secondary school in England, where we have few restrictions means that Covid is spreading. Schools are the new hotbed of disease and I encounter hundreds of … Continue reading I’ve got the Big ‘C’ ….. but not that one!
The Alexa speaker alarm goes off. It is 5:45am, in my usual workday routine I will listen to the radio (UCB1) whilst coming round and jump into the shower by 6:45am. Downstairs to eat breakfast and make lunch whilst listening to Radio 4, before leaving the house at 7:30am. It takes 25 mins to drive … Continue reading Back To Work
A reflection on the past few days
In a ward of grumpy old men there was one who was much younger. Almost half my age (a little over 30) but looking half of even this. Severely disabled he did not speak, face mask to aid breathing up often removed with deliberate yet uncontrolled hands. Whatever his needs they were mental and physical … Continue reading The Boy in the Bed
It’s been over three years since my last post. I have remained in good health, survived Covid unscathed and been doubly vaccinated. Held down a full-time teaching job. I have continued to have bimonthly haematology consultations and twice yearly renal consultations together with associated blood tests. Everything has been stable until this week …. My … Continue reading “Out of the Blue”
My year long sick leave is over. I have been signed back for to work. This has meant an end to ESA (Employment Support Allowance) and a move to JSA (Job Seekers Allowance). This is something I want to be on for as short a time as possible. Being on benefits is a bit soul … Continue reading Barrier
A year ago I was living in Mwanza. In fact, though I did not know it at the time, this day (April 1st) would be my last full day in Tanzania. A year ago tomorrow we would be heading off for a holiday in Kenya. However, Easter is a moveable feast and as such has … Continue reading One Year
Last week I had what was undoubtedly the best renal consultation in a year. I had scheduled a day of appointments with a visit to my new renal consultant at 9am followed later in the day by a scheduled appointment with my Haematology consultant at 1:15. It made for a long, but ultimately productive day, … Continue reading Zero Coke and Minimum Pepsi