It is now time to share one of the longest running sagas of my Myeloma. A long running dispute which has only been partially resolved at the very end of our time in Tanzania.
I'm free. I have no scheduled appointments at hospital for many weeks ahead. 😃 Today I met with my consultant who does not need to see me again until October, after my Stem Cell transplantation has taken place. That leaves only my scheduled stem cell harvesting in late August and the transplantation in early October. [...]
Today I went to Nottingham. This important visit was to meet with the medical team at Nottingham City Hospital who are overseeing the next phase of my treatment. That being the production, extraction and reinsertion of my stem cells back into my body either side of some intensive chemotherapy to destroy the remaining Myeloma cells. [...]
Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]
In 1984 I needed a summer job. I'd left school and wanted to earn some cash before I went to Nottingham University. I ended up getting a job as a Domestic Assistant (Cleaner) at the newly built wing of Lincoln County Hospital. My role along with a team of other young people was to clean [...]
It's become routine. Anything up to to four hours at the hospital. Waiting. Waiting in a queue of cars on the bypass. Waiting to find a parking space. Waiting for blood at Clinic 7. Waiting for nurses to do the tests. Waiting for tablets at the pharmacy. Waiting for chemotherapy on Ingham Ward. Waiting.... Waiting.... [...]
This past week at home has not been typical of what is to come. This has been a chemo free week. A pause in the treatment and a break from hospital. This is about to change. Most weeks there will be visits to hospital as an outpatient. Twice a week for a Valcade injection in [...]
It's just gone 4:30am as I write this. Just after dawn here, the early morning light peeking through the curtains. This is the start of the day for me now, the time when I am awake in my new reality. It's become habit. It started in hospital - about now is when the nurses would [...]
The bills were racking up. I had been in Aga Khan for two days and had had a number of tests but the Insurance were adamant that this was a chronic condition and that as such there was a limit on the amount thy would cover. As this is a matter of (possibly legal) conjecture [...]
Discovering the Myeloma