Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]
In 1984 I needed a summer job. I'd left school and wanted to earn some cash before I went to Nottingham University. I ended up getting a job as a Domestic Assistant (Cleaner) at the newly built wing of Lincoln County Hospital. My role along with a team of other young people was to clean [...]
It's become routine. Anything up to to four hours at the hospital. Waiting. Waiting in a queue of cars on the bypass. Waiting to find a parking space. Waiting for blood at Clinic 7. Waiting for nurses to do the tests. Waiting for tablets at the pharmacy. Waiting for chemotherapy on Ingham Ward. Waiting.... Waiting.... [...]
This past week at home has not been typical of what is to come. This has been a chemo free week. A pause in the treatment and a break from hospital. This is about to change. Most weeks there will be visits to hospital as an outpatient. Twice a week for a Valcade injection in [...]
It's just gone 4:30am as I write this. Just after dawn here, the early morning light peeking through the curtains. This is the start of the day for me now, the time when I am awake in my new reality. It's become habit. It started in hospital - about now is when the nurses would [...]
The bills were racking up. I had been in Aga Khan for two days and had had a number of tests but the Insurance were adamant that this was a chronic condition and that as such there was a limit on the amount thy would cover. As this is a matter of (possibly legal) conjecture [...]
Discovering the Myeloma