Myeloma : Then and Now

One of the programs we like to watch here in the UK is “Call the Mdwife”. It’s not my usual genre of TV, but it is a fascinating watch. The link to the title of the blog may seem tentative, but there is a point I assure you. Please read on. The plot of “Call … Continue reading Myeloma : Then and Now

Monday, Wednesday, Friday Nights

The routine is well embedded. It doesn’t matter if it’s the holidays or if I’m off work (through illness or other reasons) as I am today. Every Monday , Wednesday and Friday I leave home at 4:30pm to arrive here at 5pm for four hours of dialysis. prior to departure about an hour before, I … Continue reading Monday, Wednesday, Friday Nights

Filling in the Blanks

I realise that between May and December of last year I somewhat neglected this blog so this is an attempt to fill in the blanks. In May I took up Couch to 5K and made good and steady progress reaching Week 8 and completing several 30 min runs. I was doing really well until at … Continue reading Filling in the Blanks

The List

Today has not turned out as expected. Today I have had the call. The long expected call. The potential transplant has arrived. I have been on the transplant list since the Spring, but the list was backdated to last December (when dialysis started). The Oxford team predicted that within a year I would get the … Continue reading The List

Matter of Routine

I have settled into the routine. Each Monday, Wednesday and Friday evening I get dropped off at 6pm for a 4 hour session of dialysis. At a time which varies but is usually between 10:30pm and 11:30pm I get picked up and go home to sleep. Those of you who are mathematically minded will notice … Continue reading Matter of Routine

Back Home

I was released from the Churchill Hospital at 4pm on Thursday with a large bag of medication, This included a two week dose of cefazolin, an antibiotic. This needed to be handed over to the dialysis nurses in the renal unit at MKUH where it would be used for intravenous application at the end of … Continue reading Back Home

‘Done and Dusted‘

I have just returned to my room having had my first four hour dialysis in my new fistula. This fistula fitted on the 13th Jan performed really well for 9 weeks. The whole process was very smooth. The annoying thing is that for almost five hours (I’ll explain the extra hour later) I had To … Continue reading ‘Done and Dusted‘

Churchill Transfer and Tesio Lines

I’ve been unwell for a few days now. This first manifested at dialysis last Wednesday and again on Friday when I had uncontrollable shivers. Bloods were taken and cultured, I was admitted to MKUH, where I stayed until yesterday. At the weekend the bloods taken from my line, and from my arm were grown to … Continue reading Churchill Transfer and Tesio Lines

Infection

I have been admitted to MKUH following a bout of gastroenteritis which left me feeling very unwell. It possibly started on Monday when my Tesier Line became very sore. The first symptoms came Wednesday when during dialysis I suddenly became extremely cold and started shivering uncontrollably. This lasted quite a while and led to body … Continue reading Infection

It was all going so smoothly and then…

I have got into a routine. Every Monday, Wednesday and Friday I head off to MKUH at about 5:30pm for dialysis. Generally I am on from about 6:30pm until 10:30pm. The exception is Monday where generally I am on fom 7:00pm to 11:00pm. During my 4 hours dialysis I will listen to music or watch … Continue reading It was all going so smoothly and then…

Another Day Another Op

So today I have been back in the Foscote Hospital Banbury. I am here for a second Fistula operation. The first fistula unfortunately failed after a few dialysis sessions. There was an attempt to repair the fistula on Christmas Eve but this was unsuccessful. So on New Years Eve I had another operation to fit … Continue reading Another Day Another Op

Reaping the Benefits

I am beginning to see the benefits of regular dialysis. With the Tesier Line Fitted and the pain subsiding the dialysis sessions have gone well. I have yet to do a 4 hour session- yesterday’s session was shorter as they had had issues with other patients which meant I started an hour later. It wasn’t … Continue reading Reaping the Benefits

New Year’s Eve

Up at 6am this morning ready to leave the house by 7am for the hours journey to the Churchill. I am back here today to undergo a procedure. This morning I am being fitted with a Tesier Line. This will enable dialysis in the medium term whilst they create a new Fistula and allow it … Continue reading New Year’s Eve

Christmas

I was sent home from Churchill hospital at 8:30pm on Christmas Eve. I had completed another 3 and a half hours of dialysis to follow the previous two and a half hours on 23rd December. Finally I was feeling normal. Better than I had in months. I could feel the energy. We got home about … Continue reading Christmas

Christmas Eve

I am in the Churchill Hospital in Oxford. I was admitted yesterday following the failure of my Fistula. Last night a temporary line was fitted to my groin so I could undertake dialysis. They did two and a half hours dialysis. Today they plan to do four more hours dialysis. Also today they plan to … Continue reading Christmas Eve