It is now time to share one of the longest running sagas of my Myeloma. A long running dispute which has only been partially resolved at the very end of our time in Tanzania.
I'm free. I have no scheduled appointments at hospital for many weeks ahead. 😃 Today I met with my consultant who does not need to see me again until October, after my Stem Cell transplantation has taken place. That leaves only my scheduled stem cell harvesting in late August and the transplantation in early October. [...]
The next phase of my treatment is going to involve the use of Stem Cells. My own stem cells! Stem Cells are immature cells. Blood forming stem cells are found in the bone marrow, they are known as mononuclear cells and are continually growing into mature blood cells (red blood cells, white blood cells or [...]
Today is the day I was supposed to meet with the consultant from Nottingham. This meeting is an important one as it marks the end of the first phase of chemotherapy. This officially finishes at the end of next week, though as ever it is an off-chemo week meaning my current chemo ends this week. [...]
Even with sleeping tablets last night I was asleep much later and awake quite early - so I'm chilled out in the the bedroom late this Sunday morning. Having got up a bit earlier and been to the early service at St George's Church (in truth this early service was a bit too traditional for [...]
I can confirm that I have begun my last cycle.
Today I have met with my consultant. We meet every three weeks at the end of a chemotherapy cycle. A chance to touch base and reflect on progress. I have just completed my third cycle of chemotherapy and so approximately half way through the process or so I believed. It turns out that I have [...]
Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]
I am lucky to live in the U.K. - American friends have told me that if they were in my position then the treatment I have received would have bankrupted their families. Even my limited time in Kenya over the Easter weekend showed me just how expensive health care can be. A weekend of testing [...]
Progress is being made and I continue to remain healthy and better than I have been for several months in so many ways. The chemotherapy is working but there is a battle going on, inside a drugs war against my very own mutant cells. The bad guys, Myeloma Cells, are being taken out but there [...]
It's become routine. Anything up to to four hours at the hospital. Waiting. Waiting in a queue of cars on the bypass. Waiting to find a parking space. Waiting for blood at Clinic 7. Waiting for nurses to do the tests. Waiting for tablets at the pharmacy. Waiting for chemotherapy on Ingham Ward. Waiting.... Waiting.... [...]
A summary of the whole process I am undergoing.
It would be fair to say that life is becoming routine. Six weeks after my return to England and three weeks after I was released from hospital there is a new equilibrium. Life has changed do much in the past month and as the tornado disperses I am now finding myself in a calmer place [...]
Three weeks on from my previous Sunday Summary and a chance to take stock of where things are. This is a summary which is a good stopping off point if you are interested but don't want to wade through all my posts. I am now very much out of hospital and undergoing chemotherapy as an outpatient. I [...]