Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]
I am lucky to live in the U.K. - American friends have told me that if they were in my position then the treatment I have received would have bankrupted their families. Even my limited time in Kenya over the Easter weekend showed me just how expensive health care can be. A weekend of testing [...]
Progress is being made and I continue to remain healthy and better than I have been for several months in so many ways. The chemotherapy is working but there is a battle going on, inside a drugs war against my very own mutant cells. The bad guys, Myeloma Cells, are being taken out but there [...]
It's become routine. Anything up to to four hours at the hospital. Waiting. Waiting in a queue of cars on the bypass. Waiting to find a parking space. Waiting for blood at Clinic 7. Waiting for nurses to do the tests. Waiting for tablets at the pharmacy. Waiting for chemotherapy on Ingham Ward. Waiting.... Waiting.... [...]
A summary of the whole process I am undergoing.
It would be fair to say that life is becoming routine. Six weeks after my return to England and three weeks after I was released from hospital there is a new equilibrium. Life has changed do much in the past month and as the tornado disperses I am now finding myself in a calmer place [...]
Three weeks on from my previous Sunday Summary and a chance to take stock of where things are. This is a summary which is a good stopping off point if you are interested but don't want to wade through all my posts. I am now very much out of hospital and undergoing chemotherapy as an outpatient. I [...]
Today was the start of my second series of Chemotherapy. The first series had been entirely carried out on Waddington Ward, however today was the first time I had done this as an outpatient. The difference being that I first had to attend the doctor's surgery where I had my blood tested for my INR. [...]
I wasn't born in Lincoln, but further South in Suffolk. I lived for longer in Milton Keynes (almost 26 years). However, ask me where I grew up and where I call my home town and I will tell you Lincoln. We moved into the very same house from which I am writing this blog way [...]
Throughout my treatment for Myeloma I am required to take a cocktail of pills, morning, noon and night in order to tackle the disease via Chemotherapy and protect my body from the effects of the Chemotherapy . Added to that there are kidney drugs to tackle the problems in this organ too and general pain [...]
Finally, finally I'm home. At 6:30pm this evening I was released from Lincoln County Hospital. My potassium levels had continued to yoyo up and down but were settling at a lower level ranging from 4.8 and 5.7 This evenings reading needed to be less than 5.7 to be released and it settled at 5.6. Close [...]