Back Home

I was released from the Churchill Hospital at 4pm on Thursday with a large bag of medication, This included a two week dose of cefazolin, an antibiotic. This needed to be handed over to the dialysis nurses in the renal unit at MKUH where it would be used for intravenous application at the end of … Continue reading Back Home

Churchill Transfer and Tesio Lines

I’ve been unwell for a few days now. This first manifested at dialysis last Wednesday and again on Friday when I had uncontrollable shivers. Bloods were taken and cultured, I was admitted to MKUH, where I stayed until yesterday. At the weekend the bloods taken from my line, and from my arm were grown to … Continue reading Churchill Transfer and Tesio Lines

Infection

I have been admitted to MKUH following a bout of gastroenteritis which left me feeling very unwell. It possibly started on Monday when my Tesier Line became very sore. The first symptoms came Wednesday when during dialysis I suddenly became extremely cold and started shivering uncontrollably. This lasted quite a while and led to body … Continue reading Infection

It was all going so smoothly and then…

I have got into a routine. Every Monday, Wednesday and Friday I head off to MKUH at about 5:30pm for dialysis. Generally I am on from about 6:30pm until 10:30pm. The exception is Monday where generally I am on fom 7:00pm to 11:00pm. During my 4 hours dialysis I will listen to music or watch … Continue reading It was all going so smoothly and then…

Reaping the Benefits

I am beginning to see the benefits of regular dialysis. With the Tesier Line Fitted and the pain subsiding the dialysis sessions have gone well. I have yet to do a 4 hour session- yesterday’s session was shorter as they had had issues with other patients which meant I started an hour later. It wasn’t … Continue reading Reaping the Benefits

New Year’s Eve

Up at 6am this morning ready to leave the house by 7am for the hours journey to the Churchill. I am back here today to undergo a procedure. This morning I am being fitted with a Tesier Line. This will enable dialysis in the medium term whilst they create a new Fistula and allow it … Continue reading New Year’s Eve

The Longest Night

Today is the winter solstice. The shortest day of the year in terms of daylight. So conversely the longest period of night. My insomnia continues to be an issue and so for all but 18 minutes of last night I lay awake. You can imagine this ongoing sleep deprivation is shattering. I have three dialysis … Continue reading The Longest Night

Dialysis

Dialysis came early! A phone call yesterday morning following an email to my nurse invited me in for immediate dialysis. My health had definitely deteriorated in the last couple of days and the vomiting was the ‘straw which broke the camel’s back’ I was asked to come in at 2:30pm - problem no car! Our … Continue reading Dialysis

Under Attack!

The phrase “it never rains but it pours” describes the current situation in my family at the moment. This blog post is a bit different as it concerns not just me but many of those in my family. It would be true to say we are under attack. For those of you who share my … Continue reading Under Attack!

Medication

As my kidney condition has moved towards its ultimate destination (End Stage Kidney Disease -ESKD) the range of medications needed to replace kidney function has both changed and grown. My morning pot of meds has now become quite a mouthful. In addition there are meds to take with each meal and meds to take at … Continue reading Medication

How Things Stand! – Big Changes On the Way

I haven’t been well for some time it seems. Since May my Kidney Function has fallen over a cliff. So much so that yesterday I travelled to the Renal Dialysis Assessment Unit at Churchill Hospital. This appointment was part of a process to Fast-Track me towards dialysis. I arrived just after 1pm and was promptly … Continue reading How Things Stand! – Big Changes On the Way

Combatting the Kidney Crusher!

When I started this blog in 2017. The principle manifestation of the Myeloma seemed to be orthopaedic ie related to my bones - I had developed lesions in various bones indicative of the actions of the Myeloma over the previous months. Hence, the title of the Blog was Battling the Bone Breaker. In truth, the … Continue reading Combatting the Kidney Crusher!

Where I’m At

Time ticks on and there has been little to say in recent weeks. Both my wife and I remain off work on sick leave, following her heart attack and my slow recovery from the stem cell transplant. We both are recovering well and have started to do a little more as we gear up for … Continue reading Where I’m At

A Trip to A&E

It had been a good day. Anita and my daughter had been up to visit and we'd had a nice walk around Whisby Nature Reserve. I was feeling tired but good. Glad to be out. At about 8pm I began to feel nauseous and sadly emptied my stomach. Taking my temperature, it was 38.3°C. I … Continue reading A Trip to A&E