It's become a weekly ritual. The two hour journey up the motorway to Nottingham. Parking the car at the Wilkinson Street Park and Ride before catching the Medilink bus. I have come to the city hospital for a meeting with my consultant ahead of a scheduled admission into the hospital some time next week for [...]
Today I was back in Nottingham for a support meeting ahead of my Stem Cell implantation scheduled for the week of 23rd October. This meeting held at Maggie's Centre on the Hospital Campus was aimed at informing the process to come and consider the after care. Patients and their families were encouraged to come and [...]
Today I had a mammoth trip to Lincoln County Hospital meeting with two consultants as well as having my Hickman Line checked and prescriptions issued. All in all I spent four and a half hours in hospital, but unlike previous visits there was relatively little waiting. The day began at 9:40 when I arrived at [...]
The ongoing effect of my poor kidney function on my treatment. Yesterday in Nottingham I met with my consultant to consider the final phase of treatment which would again involve a high dose of chemotherapy followed by stem cell implantation. This was scheduled for October but has now been put on hold. Read more by clicking the title.
With the stem cell harvesting completed it's now a waiting game. I am due to return to Nottingham for a consultation on 11th Sept. to find out when exactly the final phase of treatment will take place, though tentatively it is to be in October in Nottingham. Neither the fitting of the Hickman Line nor [...]
Today Is the day I had my Hickman Line fitted. It is not a procedure I was looking forward to. Anita, who had a day off work, was able to drop me off and drive me home. This was useful as I was told not to drive home by myself. Even so a lot of [...]
It is now time to share one of the longest running sagas of my Myeloma. A long running dispute which has only been partially resolved at the very end of our time in Tanzania.
I'm free. I have no scheduled appointments at hospital for many weeks ahead. 😃 Today I met with my consultant who does not need to see me again until October, after my Stem Cell transplantation has taken place. That leaves only my scheduled stem cell harvesting in late August and the transplantation in early October. [...]
The next phase of my treatment is going to involve the use of Stem Cells. My own stem cells! Stem Cells are immature cells. Blood forming stem cells are found in the bone marrow, they are known as mononuclear cells and are continually growing into mature blood cells (red blood cells, white blood cells or [...]
Today is the day I was supposed to meet with the consultant from Nottingham. This meeting is an important one as it marks the end of the first phase of chemotherapy. This officially finishes at the end of next week, though as ever it is an off-chemo week meaning my current chemo ends this week. [...]
Even with sleeping tablets last night I was asleep much later and awake quite early - so I'm chilled out in the the bedroom late this Sunday morning. Having got up a bit earlier and been to the early service at St George's Church (in truth this early service was a bit too traditional for [...]
I can confirm that I have begun my last cycle.
Today I have met with my consultant. We meet every three weeks at the end of a chemotherapy cycle. A chance to touch base and reflect on progress. I have just completed my third cycle of chemotherapy and so approximately half way through the process or so I believed. It turns out that I have [...]
Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are [...]