Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Alongside the Myeloma and it's associated Kidney problems the other ongoing issue remains my blood. When I arrived back in the U.K. In April I returned with a DVT. Since that time, there had been a process of managing the clot by thinning the blood. Initially the use of Heparin and latterly the use of [...]
Looking back it would be difficult to identify when I first contracted Myeloma. It seems fair to say it was around before I noticed my shoulder back last December. Multiple Myeloma begins when cells in the bone marrow are subjected to external factors which might be environmental or chemical in origin and may be linked [...]
A summary of the whole process I am undergoing.
Today is World Blood Cancer Day #wbcd. The content of post comes from the WBCD website - I cannot summarise it any better myself. Diagnosis: blood cancer. Every 35 seconds, someone somewhere in the world receives the shattering news that they have been diagnosed with blood cancer. Many patients are children and young people. What [...]
Three weeks on from my previous Sunday Summary and a chance to take stock of where things are. This is a summary which is a good stopping off point if you are interested but don't want to wade through all my posts. I am now very much out of hospital and undergoing chemotherapy as an outpatient. I [...]
Part of my treatment for a Myeloma involves the use of a steroid (Dexamethasone). Dexamethasone is a type of corticosteroid called a glucocorticoid. Dexamethasone helps to reduce inflammation and calms an overactive immune system. Dexamethasone mimics the effect of cortisol, a hormone released by the adrenal glands (located on top of the kidneys) that controls [...]
Today was the start of my second series of Chemotherapy. The first series had been entirely carried out on Waddington Ward, however today was the first time I had done this as an outpatient. The difference being that I first had to attend the doctor's surgery where I had my blood tested for my INR. [...]
One of the battles with my body at the moment is the battle to thin my blood! In summary my blood is too thick! This increases the risk of clotting / DVT. I have an existing clot which needs to be managed to. Since arriving in the U.K. I have been on blood thinning drugs. [...]
This past week at home has not been typical of what is to come. This has been a chemo free week. A pause in the treatment and a break from hospital. This is about to change. Most weeks there will be visits to hospital as an outpatient. Twice a week for a Valcade injection in [...]
I'm home now. I'm feeling better but am I well? People say I look well They are encouraging me, I know Bur... Part of my response is guilt! Guilt because in my head that means I'm well. Well enough to work? I feel guilty 'cause I'm not. It's a geographical impossibility. My job in Tanzania [...]
Throughout my treatment for Myeloma I am required to take a cocktail of pills, morning, noon and night in order to tackle the disease via Chemotherapy and protect my body from the effects of the Chemotherapy . Added to that there are kidney drugs to tackle the problems in this organ too and general pain [...]
Potassium ions (K+) have dominated my health over the past week - the battle to bring the values down have been protracted and in the end it has been suppressed to sensible values. But I must remain vigilant Drinking lots of water is one thing I need to do - 3L per day is my [...]
Just a summary of where things are at. Myeloma The chemotherapy treatment has started and I have now had three courses of Velcade and two of Cyclophosphamide. This has been administered alongside the steroid Dexamethasone, following the VCD pathway. As yet there are no noticeable side effects which is good, other than a slight red rash at [...]
One thing that had been a constant since I have been in hospital is measurement of my body - whether as at the start the extent of the movement in my shoulders, to various MRI, Ultrasound, CT and X Rays tests I have had both in Nairobi and in Lincoln. More recently here in Lincoln [...]