Nottingham

It's become a weekly ritual. The two hour journey up the motorway to Nottingham. Parking the car at the Wilkinson Street Park and Ride before catching the Medilink bus. I have come to the city hospital for a meeting with my consultant ahead of a scheduled admission into the hospital some time next week for [...]

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Renal etc

Today I had a mammoth trip to Lincoln County Hospital meeting with two consultants as well as having my Hickman Line checked and prescriptions issued. All in all I spent four and a half hours in hospital, but unlike previous visits there was relatively little waiting. The day began at 9:40 when I arrived at [...]

Line Management

With the stem cell harvesting completed it's now a waiting game. I am due to return to Nottingham for a consultation on 11th Sept. to find out when exactly the final phase of treatment will take place, though tentatively it is to be in October in Nottingham. Neither the fitting of the Hickman Line nor [...]

Harvest

Today is the day when my Stem Cells are to be harvested. I arrive at Nottingham City Hospital at just after 8:30am having dropped off the hire car. As ever there is the ubiquitous blood sample to check my white blood cell (neutrophil) count and then my stem cell count. My wounds are redressed and [...]

In Between Days

Tomorrow I travel to Nottingham for the first part of the second phase of my cancer treatment. It's now over a month since the end and of my chemotherapy, the first phase of my treatment. It's been great to spend much of the last five weeks away from the regular hospital appointments and consultations. The [...]

Next Steps

Today I went to Nottingham. This important visit was to meet with the medical team at Nottingham City Hospital who are overseeing the next phase of my treatment. That being the production, extraction and reinsertion of my stem cells back into my body either side of some intensive chemotherapy to destroy the remaining Myeloma cells. [...]

Hb, WBC, Plts & Neuts?

Each Tuesday and Friday they take blood. This is sent to Haematology for testing ahead of my Valcade injections.  The values obtained determine the dose of Valcade, though in practice they work in arrears i.e. Today's Valcade relies on Tuesday's results. What are they measuring? My booklet records 4 values denoted Hb, WBC, Plts and [...]

Vitamin K

My INR levels continue to fluctuate. The lack of stability is inherent to the use of Warfarin as a blood thinner. The fact of my chemotherapy just complicates matters. Warfarin interacts with other drugs and any changes of medication can affect the effectiveness of the Warfarin. Diet also plays a part. Vitamin K is present [...]

Progress

Today I have met with my consultant. We meet every three weeks at the end of a chemotherapy cycle. A chance to touch base and reflect on progress. I have just completed my third cycle of chemotherapy and so approximately half way through the process or so I believed. It turns out that I have [...]

New Routine….Same Wait

Chemo routine subtly changed. Still Tuesdays and  Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions  Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down  Nurses short Pharmacy slow Some things don't change. Waiting.