How Things Stand! – Big Changes On the Way

I haven’t been well for some time it seems. Since May my Kidney Function has fallen over a cliff. So much so that yesterday I travelled to the Renal Dialysis Assessment Unit at Churchill Hospital. This appointment was part of a process to Fast-Track me towards dialysis. I arrived just after 1pm and was promptly … Continue reading How Things Stand! – Big Changes On the Way

Pressure Tactics

One of the side effects of Myeloma is Kidney Disease and one of the results of poor kidney function is high blood pressure. Although the Myeloma has remained in remission, my kidney function has remained low and since May (when I was briefly in hospital) my kidney function has been much less than in previous … Continue reading Pressure Tactics

“Out of the Blue”

It’s been over three years since my last post. I have remained in good health, survived Covid unscathed and been doubly vaccinated. Held down a full-time teaching job. I have continued to have bimonthly haematology consultations and twice yearly renal consultations together with associated blood tests. Everything has been stable until this week …. My … Continue reading “Out of the Blue”

Zero Coke and Minimum Pepsi

Last week I had what was undoubtedly the best renal consultation in a year. I had scheduled a day of appointments with a visit to my new renal consultant at 9am followed later in the day by a scheduled appointment with my Haematology consultant at 1:15. It made for a long, but ultimately productive day, … Continue reading Zero Coke and Minimum Pepsi

Where I’m At

Time ticks on and there has been little to say in recent weeks. Both my wife and I remain off work on sick leave, following her heart attack and my slow recovery from the stem cell transplant. We both are recovering well and have started to do a little more as we gear up for … Continue reading Where I’m At

One Last Time

Having moved back to MK at the beginning of December, I am now registered at a local GP and have an appointment in the New Year for a consultation in MK General Hospital. However, this morning I am back in Clinic 7 at Lincoln County Hospital for one last appointment. This scheduled appointment is really … Continue reading One Last Time

A Trip to A&E

It had been a good day. Anita and my daughter had been up to visit and we'd had a nice walk around Whisby Nature Reserve. I was feeling tired but good. Glad to be out. At about 8pm I began to feel nauseous and sadly emptied my stomach. Taking my temperature, it was 38.3°C. I … Continue reading A Trip to A&E

Transfusion

The featured image shows my room from the outside. The long thin widows nearest to the grey tiled building are mine. As my neutrophils have continued to rise up to 0.6 at last count. The engrafted stem cells developing into neutrophils, red blood cells and platelets among other things. I have also had GCSF injections … Continue reading Transfusion

Hot and Cold

As I reach the bottom of the neutropenia curve, I am experiencing temperature fluctuations. Although generally I feel cold I have actually had a temperature of 38°C or above on a couple of occasions in the past two nights. This has required urgent action. Last night at 1am I was having blood extracted for culture … Continue reading Hot and Cold

Neutropenic

I am now neutropenic. This means that there has been a significant drop in the number of neutrophils in my blood stream. Neutrophils are a particular type of white blood cell which are used as part of the bodies immune system. The neutrophils contain sacks of enzymes which digest microorganisms. The effect of the Melphalan … Continue reading Neutropenic

Time Shifts Slowly

A matter of routine. The days morph into weeks. One week down already. A long and slow descent. As my cells die slowly.   Within this room I lie. With four familiar walls. Shuttered window viewpoint. On Autumn world outside. It's a limited life.   Here in isolation. Yet not alone at all. Friends and … Continue reading Time Shifts Slowly

Get the Balance Right

The body is a complex organism. There are many chemical reactions going on inside of us all of the time and we never give it a second thought most of the time. As processes happen others are triggered which compensate and result in a consistent environment which keeps us healthy most of the time. Biologists … Continue reading Get the Balance Right