Today I went to Nottingham. This important visit was to meet with the medical team at Nottingham City Hospital who are overseeing the next phase of my treatment. That being the production, extraction and reinsertion of my stem cells back into my body either side of some intensive chemotherapy to destroy the remaining Myeloma cells. [...]
Each Tuesday and Friday they take blood. This is sent to Haematology for testing ahead of my Valcade injections. The values obtained determine the dose of Valcade, though in practice they work in arrears i.e. Today's Valcade relies on Tuesday's results. What are they measuring? My booklet records 4 values denoted Hb, WBC, Plts and [...]
My INR levels continue to fluctuate. The lack of stability is inherent to the use of Warfarin as a blood thinner. The fact of my chemotherapy just complicates matters. Warfarin interacts with other drugs and any changes of medication can affect the effectiveness of the Warfarin. Diet also plays a part. Vitamin K is present [...]
Today I have met with my consultant. We meet every three weeks at the end of a chemotherapy cycle. A chance to touch base and reflect on progress. I have just completed my third cycle of chemotherapy and so approximately half way through the process or so I believed. It turns out that I have [...]
In the English vernacular" I'm knackered". After three days out of the last four days on the road I'm exhausted. A sign of my illness no doubt as well as the variable sleep patterns over the weekend. I had enough energy to walk to the doctor for my weekly INR this morning where my blood [...]
Chemo routine subtly changed. Still Tuesdays and Fridays Still Bloods to be taken Still Valcade to inject Same observations. Same Questions Numbness? Hearing? Walking? Buttons? Location changed Clinic 7 to Ingham Fast through Clinic 7 Same long wait at Ingham Staff down Nurses short Pharmacy slow Some things don't change. Waiting.
Alongside the Myeloma and it's associated Kidney problems the other ongoing issue remains my blood. When I arrived back in the U.K. In April I returned with a DVT. Since that time, there had been a process of managing the clot by thinning the blood. Initially the use of Heparin and latterly the use of [...]
Looking back it would be difficult to identify when I first contracted Myeloma. It seems fair to say it was around before I noticed my shoulder back last December. Multiple Myeloma begins when cells in the bone marrow are subjected to external factors which might be environmental or chemical in origin and may be linked [...]
A summary of the whole process I am undergoing.
Today is World Blood Cancer Day #wbcd. The content of post comes from the WBCD website - I cannot summarise it any better myself. Diagnosis: blood cancer. Every 35 seconds, someone somewhere in the world receives the shattering news that they have been diagnosed with blood cancer. Many patients are children and young people. What [...]
Three weeks on from my previous Sunday Summary and a chance to take stock of where things are. This is a summary which is a good stopping off point if you are interested but don't want to wade through all my posts. I am now very much out of hospital and undergoing chemotherapy as an outpatient. I [...]
Part of my treatment for a Myeloma involves the use of a steroid (Dexamethasone). Dexamethasone is a type of corticosteroid called a glucocorticoid. Dexamethasone helps to reduce inflammation and calms an overactive immune system. Dexamethasone mimics the effect of cortisol, a hormone released by the adrenal glands (located on top of the kidneys) that controls [...]
Today was the start of my second series of Chemotherapy. The first series had been entirely carried out on Waddington Ward, however today was the first time I had done this as an outpatient. The difference being that I first had to attend the doctor's surgery where I had my blood tested for my INR. [...]
One of the battles with my body at the moment is the battle to thin my blood! In summary my blood is too thick! This increases the risk of clotting / DVT. I have an existing clot which needs to be managed to. Since arriving in the U.K. I have been on blood thinning drugs. [...]
This past week at home has not been typical of what is to come. This has been a chemo free week. A pause in the treatment and a break from hospital. This is about to change. Most weeks there will be visits to hospital as an outpatient. Twice a week for a Valcade injection in [...]