Transfusion

The featured image shows my room from the outside. The long thin widows nearest to the grey tiled building are mine. As my neutrophils have continued to rise up to 0.6 at last count. The engrafted stem cells developing into neutrophils, red blood cells and platelets among other things. I have also had GCSF injections … Continue reading Transfusion

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Ups and downs

This past 24 hours I have started to feel more unwell. This has mainly been a low level nausea and an accompanying headache. I have completely lost my appetite and find it particularly hard to eat any form of meat. I have been given anti- sickness and anti-diarrhoea medicines which has helped. My mouth and … Continue reading Ups and downs

Day 0/1

Today has been busy, after a quieter morning. I managed to get reasonable sleep in spite of regular trips to the loo, due to the diuretics. They were worried I was retaining too much water, but the body is a complex organism and getting the balance is difficult. In recent days they have increased my … Continue reading Day 0/1

Feeling Messed About

A phone call at 5pm last night has left me feeling a little messed about. The call from my consultant at Nottingham was to inform me that when I go in on Sunday or Monday they will not after all perform the chemotherapy. Instead Renal will look at my kidney to determine whether I will … Continue reading Feeling Messed About

Treatment and After Care

Today I was back in Nottingham for a support meeting ahead of my Stem Cell implantation scheduled for the week of 23rd October. This meeting held at Maggie's Centre on the Hospital Campus was aimed at informing the process to come and consider the after care. Patients and their families were encouraged to come and … Continue reading Treatment and After Care

Ill when you’re ill

I am writing this from bed where I have spent much of the past two days. On Sunday night I felt the telltale signs of an oncoming cold. I think normally I would probably carry on, but this time it has been different. The cold has 'knocked me for six'. The persistent cough and runny … Continue reading Ill when you’re ill

New Norm

The ring of the alarm. 7 am Morning comes too soon. On a good night I've been up twice. But sometimes thrice. Early hours ablutions. Within minutes they are up. Wife an daughter. Showers, hairdryers, dressed, breakfast out. The hustle and bustle of a typical morning followed by Silence. The house is quiet. Maybe another … Continue reading New Norm

Renal etc

Today I had a mammoth trip to Lincoln County Hospital meeting with two consultants as well as having my Hickman Line checked and prescriptions issued. All in all I spent four and a half hours in hospital, but unlike previous visits there was relatively little waiting. The day began at 9:40 when I arrived at … Continue reading Renal etc

Free

I'm free. I have no scheduled appointments at hospital for many weeks ahead. 😃 Today I met with my consultant who does not need to see me again until October, after my Stem Cell transplantation has taken place. That leaves only my scheduled stem cell harvesting in late August and the transplantation in early October.  … Continue reading Free

Rolling to the Right

The first manifestation of which I was aware of in Multiple Myeloma was the severe pain in my right shoulder. This became apparent in December. I naturally roll over to my right when I am going to sleep at night and I began to notice that this was becoming increasingly sore and uncomfortable. By February … Continue reading Rolling to the Right

Progress

Today I have met with my consultant. We meet every three weeks at the end of a chemotherapy cycle. A chance to touch base and reflect on progress. I have just completed my third cycle of chemotherapy and so approximately half way through the process or so I believed. It turns out that I have … Continue reading Progress