I have woken with a bad headache. Interestingly that in the last few months my general health has been good and I have had little in the way of other illness. At the same time I have been much more attuned to my body. I think the fact you're being tested and measured on such [...]
I'm free. I have no scheduled appointments at hospital for many weeks ahead. 😃 Today I met with my consultant who does not need to see me again until October, after my Stem Cell transplantation has taken place. That leaves only my scheduled stem cell harvesting in late August and the transplantation in early October. [...]
The first manifestation of which I was aware of in Multiple Myeloma was the severe pain in my right shoulder. This became apparent in December. I naturally roll over to my right when I am going to sleep at night and I began to notice that this was becoming increasingly sore and uncomfortable. By February [...]
A contribution to the new photo challenge:Collage A collage of Herbal Teas to give a little variety in my beverages.
I'm here at the dentist. As if I didn't spend enough time with the medical profession these days. It's hard to believe that I only used to visit the doctor once a year at best for Hay Fever prescriptions. I'm here for a check up, but in reality I'm joining the dentist as I gave [...]
Today I have met with my consultant. We meet every three weeks at the end of a chemotherapy cycle. A chance to touch base and reflect on progress. I have just completed my third cycle of chemotherapy and so approximately half way through the process or so I believed. It turns out that I have [...]
In the English vernacular" I'm knackered". After three days out of the last four days on the road I'm exhausted. A sign of my illness no doubt as well as the variable sleep patterns over the weekend. I had enough energy to walk to the doctor for my weekly INR this morning where my blood [...]
A progress update at the end of the second cycle.
Part of my treatment for a Myeloma involves the use of a steroid (Dexamethasone). Dexamethasone is a type of corticosteroid called a glucocorticoid. Dexamethasone helps to reduce inflammation and calms an overactive immune system. Dexamethasone mimics the effect of cortisol, a hormone released by the adrenal glands (located on top of the kidneys) that controls [...]
Today was the start of my second series of Chemotherapy. The first series had been entirely carried out on Waddington Ward, however today was the first time I had done this as an outpatient. The difference being that I first had to attend the doctor's surgery where I had my blood tested for my INR. [...]
Today I have done one of the very last things I need to do for my work as a teacher in Mwanza. Something I can do here in Lincoln, to prepare the end of year exams for Year 10. The only other thing I will need to do is to mark those exams electronically in [...]
Water is the stuff of life - they say. For me water is very much centre stage at the moment. Water coming in and water coming out! I am required to drink 3L a day of water to keep my kidney flushed and to bring it back to good health, to mitigate against the paraprotein [...]
Just a summary of where things are at. Myeloma The chemotherapy treatment has started and I have now had three courses of Velcade and two of Cyclophosphamide. This has been administered alongside the steroid Dexamethasone, following the VCD pathway. As yet there are no noticeable side effects which is good, other than a slight red rash at [...]
One thing that had been a constant since I have been in hospital is measurement of my body - whether as at the start the extent of the movement in my shoulders, to various MRI, Ultrasound, CT and X Rays tests I have had both in Nairobi and in Lincoln. More recently here in Lincoln [...]
The whirlwind which has blown through my life in the past month has taken its toll both physically as well as emotionally. The speed of the process has been the most devastating. Little did I think when I boarded the overnight bus to Nairobi on the 2nd April I did not imagine that would be [...]