Time Shifts Slowly

A matter of routine. The days morph into weeks. One week down already. A long and slow descent. As my cells die slowly.   Within this room I lie. With four familiar walls. Shuttered window viewpoint. On Autumn world outside. It's a limited life.   Here in isolation. Yet not alone at all. Friends and … Continue reading Time Shifts Slowly

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Rolling to the Right

The first manifestation of which I was aware of in Multiple Myeloma was the severe pain in my right shoulder. This became apparent in December. I naturally roll over to my right when I am going to sleep at night and I began to notice that this was becoming increasingly sore and uncomfortable. By February … Continue reading Rolling to the Right

Beginnings 

Looking back it would be difficult to identify when I first contracted Myeloma. It seems fair to say it was around before I noticed my shoulder back last December. Multiple Myeloma begins when cells in the bone marrow are subjected to external factors which might be environmental or chemical in origin and may be linked … Continue reading Beginnings 

Aches and Pains

It is the end of my second cycle of chemotherapy and I enter into my chemo free week. This brings mixed blessings - firstly there are no steroids to take so that I shall hopefully be able to get better sleep as the week wears on. There are no Valcade injections so less trips to … Continue reading Aches and Pains

Sunday Summary – 28th May (Symptoms)

Three weeks on from my previous Sunday Summary and a chance to take stock of where things are. This is a summary which is a good stopping off point if you are interested but don't want to wade through all my posts. I am now very much out of hospital and undergoing chemotherapy as an outpatient. I … Continue reading Sunday Summary – 28th May (Symptoms)

Steroids

Part of my treatment for a Myeloma involves the use of a steroid (Dexamethasone). Dexamethasone is a type of corticosteroid called a glucocorticoid. Dexamethasone helps to reduce inflammation and calms an overactive immune system. Dexamethasone mimics the effect of cortisol, a hormone released by the adrenal glands (located on top of the kidneys) that controls … Continue reading Steroids

Better by Far

As I am in the middle of my second bout of Chemotherapy it's time to reflect on where things are. I expected that the chemotherapy would be making me ill. You here scare stories of hair loss and sickness. Maybe that will come, though I am assured hair loss is unlikely with Valcade.  In truth … Continue reading Better by Far

Outpatient 

Today was the start of my second series of Chemotherapy. The first series had been entirely carried out on Waddington Ward, however today was the first time I had done this as an outpatient. The difference being that I first had to attend the doctor's surgery where I had my blood tested for my  INR. … Continue reading Outpatient 

Guilt

I'm home now. I'm feeling better but am I well? People say I look well They are encouraging  me,  I know  Bur... Part of my response is guilt! Guilt because in my head that means I'm well. Well enough to work?  I feel guilty 'cause I'm not. It's a geographical impossibility. My job in Tanzania … Continue reading Guilt

Sunday Summary – 7th May

Just a summary of where things are at. Myeloma The chemotherapy treatment has started and I have now had three courses of Velcade and two of Cyclophosphamide. This has been administered alongside the steroid Dexamethasone, following the VCD pathway. As yet there are no noticeable side effects which is good, other than a slight red rash at … Continue reading Sunday Summary – 7th May

Biometrics

One thing that had been a constant since I have been in hospital is measurement of my body - whether as at the start the extent of the movement in my shoulders, to various MRI, Ultrasound, CT and X Rays tests I have had both in Nairobi and in Lincoln. More recently here in Lincoln … Continue reading Biometrics

Falling off a Cliff

The past two and a half weeks have been a whirlwind. It seemed that for a long time my body was struggling on with all of the various ailments I was suffering which I put down to age and aching muscles and I carried on virtually unaffected until I broke my fibula. Even the shoulder … Continue reading Falling off a Cliff

Chemotherapy (VCD) – Basics

Information here is taken from various booklets received by me and interpreted in a non-expert way - they should not be taken in any other context than my own - possibly muddle opinions. Chemotherapy is not a single thing. It is not a static process but a dynamic one which combines different drugs taken over … Continue reading Chemotherapy (VCD) – Basics