Matter of Routine

I have settled into the routine. Each Monday, Wednesday and Friday evening I get dropped off at 6pm for a 4 hour session of dialysis. At a time which varies but is usually between 10:30pm and 11:30pm I get picked up and go home to sleep. Those of you who are mathematically minded will notice … Continue reading Matter of Routine

Back Home

I was released from the Churchill Hospital at 4pm on Thursday with a large bag of medication, This included a two week dose of cefazolin, an antibiotic. This needed to be handed over to the dialysis nurses in the renal unit at MKUH where it would be used for intravenous application at the end of … Continue reading Back Home

‘Done and Dusted‘

I have just returned to my room having had my first four hour dialysis in my new fistula. This fistula fitted on the 13th Jan performed really well for 9 weeks. The whole process was very smooth. The annoying thing is that for almost five hours (I’ll explain the extra hour later) I had To … Continue reading ‘Done and Dusted‘

Churchill Transfer and Tesio Lines

I’ve been unwell for a few days now. This first manifested at dialysis last Wednesday and again on Friday when I had uncontrollable shivers. Bloods were taken and cultured, I was admitted to MKUH, where I stayed until yesterday. At the weekend the bloods taken from my line, and from my arm were grown to … Continue reading Churchill Transfer and Tesio Lines

Infection

I have been admitted to MKUH following a bout of gastroenteritis which left me feeling very unwell. It possibly started on Monday when my Tesier Line became very sore. The first symptoms came Wednesday when during dialysis I suddenly became extremely cold and started shivering uncontrollably. This lasted quite a while and led to body … Continue reading Infection

Dialysis

Dialysis came early! A phone call yesterday morning following an email to my nurse invited me in for immediate dialysis. My health had definitely deteriorated in the last couple of days and the vomiting was the ‘straw which broke the camel’s back’ I was asked to come in at 2:30pm - problem no car! Our … Continue reading Dialysis

Wide Awake

It’s just before 4am as I write this. The middle of yet another sleepless night. I have seen each hour of the night so far and it’s been like this for days now. The sleeping tablets (Amitriptyline) had limited effect and I have stopped taking them. Basically they made me drowsy but did not result … Continue reading Wide Awake

Race Against Time

It’s now three weeks since my Fistula operation. The procedure has been a success and the scar is healing well. Unfortunately my health has deteriorated somewhat. My kidney is very much in the last stage of Chronic Kidney Disease. I have a GFR of just 3. This is a measure of my kidney’s ability to … Continue reading Race Against Time

Pressure Tactics

One of the side effects of Myeloma is Kidney Disease and one of the results of poor kidney function is high blood pressure. Although the Myeloma has remained in remission, my kidney function has remained low and since May (when I was briefly in hospital) my kidney function has been much less than in previous … Continue reading Pressure Tactics

“Out of the Blue”

It’s been over three years since my last post. I have remained in good health, survived Covid unscathed and been doubly vaccinated. Held down a full-time teaching job. I have continued to have bimonthly haematology consultations and twice yearly renal consultations together with associated blood tests. Everything has been stable until this week …. My … Continue reading “Out of the Blue”

Hot and Cold

As I reach the bottom of the neutropenia curve, I am experiencing temperature fluctuations. Although generally I feel cold I have actually had a temperature of 38°C or above on a couple of occasions in the past two nights. This has required urgent action. Last night at 1am I was having blood extracted for culture … Continue reading Hot and Cold

Weekly Photo Challenge: Focus (Venus, Mars and a later Moon)

A submission to this week's photo challenge : Focus. Taking photos of the night sky is difficult - my Canon EOS 70D needed a lot of tweaking to get something and in truth my inexperience got less than focused shots of the sky on that occasion. It was however, too good an opportunity to miss … Continue reading Weekly Photo Challenge: Focus (Venus, Mars and a later Moon)

Frustrating Days

The potassium won't drop consistently and hovers around 6 - critical for most of the day teaching a high of 6.4. Haematology have suggested that it might be a false positive but Renal are more cautious and up the meds. I spent most of the night last night and all of the afternoon.and evening booked … Continue reading Frustrating Days

False Positives

So one possible explanation of my raised Potassium appears to be due to the large number of dead Myeloma cells in my blood stream, which have been destroyed by the chemotherapy- these cells - full of potassium are giving false positive readings  due to the method of testing. More blood extraction has not reveal acidima … Continue reading False Positives