Yesterday I travelled to Oxfordshire to the town of Banbury. The purpose of the journey was to undergo an operation on my arm to create a Fistula. The first stage of a process which will lead to Dialysis. The past couple of weeks have been challenging as I have come to terms with the magnitude … Continue reading Fistula
It had been a good day. Anita and my daughter had been up to visit and we'd had a nice walk around Whisby Nature Reserve. I was feeling tired but good. Glad to be out. At about 8pm I began to feel nauseous and sadly emptied my stomach. Taking my temperature, it was 38.3°C. I … Continue reading A Trip to A&E
I was released from hospital a day earlier than expected and given transport back to Lincoln. It is here I will be staying for the coming few weeks as I recuperate. Lincoln is my family home. It is also the UK hospital where I was first diagnosed and treated for Myeloma. When my wife (Anita) … Continue reading Why Lincoln?
The featured image shows my room from the outside. The long thin widows nearest to the grey tiled building are mine. As my neutrophils have continued to rise up to 0.6 at last count. The engrafted stem cells developing into neutrophils, red blood cells and platelets among other things. I have also had GCSF injections … Continue reading Transfusion
As I reach the bottom of the neutropenia curve, I am experiencing temperature fluctuations. Although generally I feel cold I have actually had a temperature of 38°C or above on a couple of occasions in the past two nights. This has required urgent action. Last night at 1am I was having blood extracted for culture … Continue reading Hot and Cold
I am now neutropenic. This means that there has been a significant drop in the number of neutrophils in my blood stream. Neutrophils are a particular type of white blood cell which are used as part of the bodies immune system. The neutrophils contain sacks of enzymes which digest microorganisms. The effect of the Melphalan … Continue reading Neutropenic
It's a little weird being here in hospital. Although I am not well (obviously) I am not feeling really ill. So whilst they monitor and measure I remain for now in relatively good health. My neutrophils remain high, so for now my body remains protected from the environment around me. I do know for certain … Continue reading Calm Before The Storm