I was sent home from Churchill hospital at 8:30pm on Christmas Eve. I had completed another 3 and a half hours of dialysis to follow the previous two and a half hours on 23rd December.
Finally I was feeling normal. Better than I had in months. I could feel the energy. We got home about 10pm. Time for a glass of Mulled Wine and then sit down with the family to watch a Christmas Movie (Muppet Christmas Carol) before bedtime.
I slept better than I had for a few weeks – just about 4 hours. Waking early on Christmas morning. I have tried to change my attitude to the lack of sleep. I am determined for to worry about it and not to focus on the time of night. If I am awake just rest, focus on breathing and see what happens – often I end up asleep again.
The itching has subsided, the thirst is much less of an issue and my appetite is back. I ate a full Christmas Dinner (duck with all the trimmings) as well as all the usualChristmas foods.it’s great to feel normal again.
Since Christmas Day I have continued to feel fine. I do need to watch my liquid consumption as I am getting swollen ankles but otherwise no ill effects.
Sadly my Fistula is non-functioning. The repair job was unsuccessful and so at some point I will need a new Fistula.
In the short to medium term the only solution is to have a line fitted to my chest. This will be used for dialysis for several months whilst a new fistula is created and left to mature properly.
So on Friday I head back to Churchill at 8am where they will operate to got a chest line. I will then do a four hour dialysis before they release me at 6pm. In time for Nee Years Eve which we hope to spend at my in- laws in nearby Abingdon.
If the dialysis goes well I will be very soon put onto Twilight Sessions in Milton Keynes where life can return to normal again in 2022.
Great to hear you are feeling so much better at last, but sorry about the fistula.
Gill
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Sending good wishes!
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