It was in February of this year I first noticed this. At the time I had no idea why. In the months since it has been a constant presence. Sometimes subtle, sometimes overwhelming. At its worst it has induced nausea. In Nairobi, just before the diagnosis of Myeloma it was acute.
A bitter, salty, metallic taste. The easiest comparison is dilute sea water.
It is an outcome of my poorly functioning kidney, which itself is a symptom of the Myeloma. My kidney’s low GFR means the body has higher than normal creatinine levels. The waxing and waning of the taste is no doubt linked to what I am eating as well as how much water I’m drinking. The more water the better the taste, but too much water will cause my feet and ankles to swell and will overwork the kidney. So there is a balance.
At the moment the taste has waned a little which is good. My hopes and prayers are that this will continue and linked, as it is, to my one kidney, that it will recover to a higher functioning level.