People often say that I look well and in many ways I feel healthy and look reasonably well, but Myeloma can be a deceptive disease. Deep within my body there are lots of things going on and the drugs needed to control these processes are numerous.
At the moment my main concerns remain
- Kidney function – really low and ongoing chronic loss of functionality – no real improvement in several weeks.
- Anaemia – leaving me tired at times and lacking energy
- Peripheral Neuropathy – which is now becoming more common in my arms and legs – a slight burning sensation and pins and needles – becoming more prevalent during this second week of chemotherapy.
I remain positive the therapies are working – the neuropathy is as much a side effect of the treatment as it is Myeloma. Bone pain is much reduced, if not gone altogether. I am not getting recurrent infections, though need to keep an eye on my temperature which hovers for much of the time above 37°C and needs to remain at or below 37.5°C or else I need to be readmitted to hospital.
You can find out more by following the links below. This week is Myeloma Awareness Week.