Be Aware!

Today is the start of Myeloma Awareness Week and I make non bones (pardon the pun) about sharing some of the promotional material released today. 

The focus of the campaign this year is Early Diagnosis and since I have crossed one hurdle it is worth emphasise that 1 in 5 people who are diagnosed are dead in 60 days. 

On the up side treatments are improving rapidly and they are aiming for a cure. New medicines such as Valcade, Stem Cell Technology, and the propspect of Immunotherapy are all adding to the the panoply of possibilities which will optimistically render this a treatable (if chronic disease). However, doctor’s need to diagnose earlier.

Living in Mwanza in Tanzania (Africa) until just three months ago I could have gone on unaware. I do thank God, that I got to Nairobi in time and was seen by a knowledgeable Orthopdeic Surgeon, treated by a good set of doctors both at Aga Khan Hospital, who recognised the lesions and diagnosed the cancer. The fact that we were never going to afffored long term treatment forced us back to the UK and the flight  back following on from the many hours on buses in Kenya may have resulted in the DVT. 

Perversely this  DVT was probably a blessing in disguise getting me seen quickly and treated early back in UK- a comination of a vigilent GP, thorough assessment at Lincoln County Hospital (ACU, MEAU and Waddington Ward) and the Haematology  team.

I have been blessed but others will not have been so fortunate so making medical professionals aware early is important.

For now this is a link – when it gets to YouTube I’ll embed it.

Other posts to follow as they come please consider sharing and promoting this post.

2 thoughts on “Be Aware!

  1. Thank you so much for sharing with us and making us aware. Also thank you for your openness and honesty. Bless you!

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  2. Wasn’t it just so good that you got such an early diagnosis and fast tracked straight into Lincoln Hospital as soon as you arrived back in UK! Although such a shock diagnosis and consequences, that does, as you imply, point to the hand of God on your life! That’s reassuring, isn’t it!

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